1. < Heart Rhythm Conditions

How to live after weaning off carvedilol

Posted by sergi @sergi, Mar 7 8:13am

After being on carvedilol for 7 years in a row, I had to discontinue it because basically it did more harm than provided benefits. I did it because the cardiologist I consulted believed I didn’t need it in the first place and taking it was unnecessary. Actually the guy believes i don't even have arrhythmias but in fact I had several adverse reactions attributable to carvedilol at the time. I had been weaning off carvedilol for 3 weeks, gradually reducing the dose. I reached the zero dose about two weeks ago. Since then, I have had serious problems keeping tachycardias at bay, some of which now and again lead to fibrillation. I feel particularly vulnerable after sleeping, if at all. Any movement causes sudden acceleration of the heart, and some relief is achieved by gradual hydration, but the very act of drinking causes palpitations and rhythm disturbances. As I said, the cardiologist I am dealing with now is of no help because he doesn't seem to believe that I have arrhythmias at all or that I can know how my heart works at any time. The tests he has carried out and/or ordered have not confirmed my condition as I claim, because my heart works like a good watch whenever it is under observation. So basically I have no local dialogue on the subject that would be helpful in any meaningful way. I have no contact with the cardiologist who had prescribed carvedilol in the first place because he died in 2022. Is there a way to train my system to live without carvedilol? Any natural techniques of survival? I am a very lean individual, severely underweight (probably) due to concurrent lung problem, just saying, because most probably the suggestions will be to regulate my body weight, which is unfortunately unachievable. My diet is essentially free of triggers that can cause arrhythmias, and I have been on this diet since fibrillation episodes started in 2012. Fibrillating right now! Thank you for any advice!

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sergi | @sergi | Mar 11 9:39pm
In reply to @lindy9 "I don't mind exchanging but I would want to delete once you had it, and don't..." + (show)
@lindy9

I don't mind exchanging but I would want to delete once you had it, and don't think possible. I do not have whatsap, only a local phone and email.

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unfortunately yes, the messages are indelible here, i noticed they are editable but don't know for how long.

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sergi | @sergi | Mar 12 1:19pm
In reply to @lindy9 "I don't mind exchanging but I would want to delete once you had it, and don't..." + (show)
@lindy9

I don't mind exchanging but I would want to delete once you had it, and don't think possible. I do not have whatsap, only a local phone and email.

Jump to this post

Hi Linda.
The case is solved!
I visited pulmonologist today and he confirmed there is severe atheromatosis of pulmonary arteries which can easily be the cause of all cardiac problems. So carvedilol isn't the culprit here. It's just a totally different condition. And there is no cure. So basically there are no questions. I don't think any changes in the diet are now able to change anything.
Thank you for your concern anyway and have a lovely weekend ahead!

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jc76 | @jc76 | Mar 12 5:12pm
In reply to @lindy9 "I don't mind exchanging but I would want to delete once you had it, and don't..." + (show)
@lindy9

I don't mind exchanging but I would want to delete once you had it, and don't think possible. I do not have whatsap, only a local phone and email.

Jump to this post

@lindy9 @sergio
Can I suggest using the private message. This allow you to exchange information you do not want on public forum and a secure way of corresponding with the information you area concerned with. I have used this many many times.

You will see an envelope at top of stat of MCC. You just click on it and click send private message. You type in the @ I.D.

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2 replies
sergi | @sergi | Mar 12 6:58pm
In reply to @jc76 "@lindy9 @sergio Can I suggest using the private message. This allow you to exchange information you..." + (show)
@jc76

@lindy9 @sergio
Can I suggest using the private message. This allow you to exchange information you do not want on public forum and a secure way of corresponding with the information you area concerned with. I have used this many many times.

You will see an envelope at top of stat of MCC. You just click on it and click send private message. You type in the @ I.D.

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thank you so much!

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sergi | @sergi | Mar 13 7:35am
In reply to @jc76 "@lindy9 @sergio Can I suggest using the private message. This allow you to exchange information you..." + (show)
@jc76

@lindy9 @sergio
Can I suggest using the private message. This allow you to exchange information you do not want on public forum and a secure way of corresponding with the information you area concerned with. I have used this many many times.

You will see an envelope at top of stat of MCC. You just click on it and click send private message. You type in the @ I.D.

Jump to this post

You know, this function doesn't work for me - i only see there that i have no messages and a box to search for messages:)

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1 reply
sergi | @sergi | Mar 13 8:52am
In reply to @lindy9 "I don't mind exchanging but I would want to delete once you had it, and don't..." + (show)
@lindy9

I don't mind exchanging but I would want to delete once you had it, and don't think possible. I do not have whatsap, only a local phone and email.

Jump to this post

Hi Linda
hope you are ok! if you still don't mind exchanging, i think there is an external option - I have an account on cara.app, an artist hub (whereto all artists are migrating from instagram because of zuckerberg's ai-training practices) where i have my portfolio as @opus1catti (sergi_marx), I think you can enter it using your google account and just leave a comment in any place of my portfolio, i think there is no need to set an account for that purpose. Then to that comment i will reply giving you an email address. The comment can be deleted afterwards but normally no one gives a fluff about such things, it's so teaming with artists that no one pays attention to anyone else's activities:)

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1 reply
lindy9 | @lindy9 | Mar 13 11:23am
In reply to @sergi "Hi Linda hope you are ok! if you still don't mind exchanging, i think there is..." + (show)
@sergi

Hi Linda
hope you are ok! if you still don't mind exchanging, i think there is an external option - I have an account on cara.app, an artist hub (whereto all artists are migrating from instagram because of zuckerberg's ai-training practices) where i have my portfolio as @opus1catti (sergi_marx), I think you can enter it using your google account and just leave a comment in any place of my portfolio, i think there is no need to set an account for that purpose. Then to that comment i will reply giving you an email address. The comment can be deleted afterwards but normally no one gives a fluff about such things, it's so teaming with artists that no one pays attention to anyone else's activities:)

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I tried to send message but keeps saying I am lacking name or something. I couldn't figure it out. Write exactly what your address should be and also mine.

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2 replies
sergi | @sergi | Mar 13 2:56pm
In reply to @lindy9 "I tried to send message but keeps saying I am lacking name or something. I couldn't..." + (show)
@lindy9

I tried to send message but keeps saying I am lacking name or something. I couldn't figure it out. Write exactly what your address should be and also mine.

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you tried where? here on this forum? or on the cara.app?

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1 reply
sergi | @sergi | Mar 13 2:57pm
In reply to @lindy9 "I tried to send message but keeps saying I am lacking name or something. I couldn't..." + (show)
@lindy9

I tried to send message but keeps saying I am lacking name or something. I couldn't figure it out. Write exactly what your address should be and also mine.

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if you are here now, i can give you my email right here, then just edit/redact it after you confirm you have it

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jc76 | @jc76 | Mar 13 4:26pm
In reply to @sergi "You know, this function doesn't work for me - i only see there that i have..." + (show)
@sergi

You know, this function doesn't work for me - i only see there that i have no messages and a box to search for messages:)

Jump to this post

@sergio Did you change your I.D.?
I see I put in @sergio and you responded but now I see your I.D. as @sergi
The @sergi does not come up under members.

You can go to top of MCC page. Look under the search box and look to far right and you will see help center. In help center you will see questions. One of those is sending secure message. Just follow those.

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