This is the privacy policy posted in the FAQ section of the Promise Study website. I was satisfied with it. In addition, I believe any risk is outweighed by the knowledge, understanding and potential new therapies researchers hope to achieve through our participation.

"How will the PROMISE study protect data privacy?
Your Data: The PROMISE Study is committed to your data security. Our partners are leaders in research and data sciences. Every item of data and physical access point is secured for our participants' privacy and protection. From the blood draws at Quest Diagnostics labs to data warehousing at The Broad Institute, your information will be sent to us, and maintained by us, with the highest standards of security and confidentiality.

Our Study Reports: Our research is looking for trends among groups of people with similar characteristics and biomarkers. Your name and identifying information will always be kept private. We will never share study reports that provide personal details about any specific individual.

We do not share your data for any reason with anyone outside this study. You will not receive marketing materials of any kind. "

In the end, we must each do our own cost/benefit analysis.