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Newly diagnosed with MGUS and so anxious

Blood Cancers & Disorders | Last Active: Mar 13 5:27pm | Replies (23)
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@scared58

Thank you
Once again you all seem so knowledgeable and I don’t have much of a clue yet other than my protein reading
I am in the uk I am not sure if you are I don’t know if those services are available but something should be so I will check it out
Thank you I do appreciate your support so much

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Replies to "Thank you Once again you all seem so knowledgeable and I don’t have much of a..."
emmiet | @emmiet | Mar 13 11:20am

@scared58 Some of us have been on this journey for many years, so don't feel you're behind.☺ Mine started in 2021. The lymphoma societies are great places to start.

Coincidentally, when I was first diagnosed, I leaned heavily upon the online resources from a UK organization called Lymphoma Action. I find their webinars and personal video stories comforting and informative. When I entered the "Watch and Wait" protocol last year, I viewed their video of a panel discussion of patients and doctors discussing what it's like. Again, it was pretty comforting.

Here's some info from Luekemia Action's About Page
"We are the UK's only charity dedicated to lymphoma, the fifth most common cancer. We've been providing trusted information and support for over 35 years, helping thousands of people affected by lymphoma.

Our mission is to make sure no one faces lymphoma alone."

There's another called Blood Cancer UK. Their site has a section dedicated to MGUS. (I'm sure there are more organizations, but it's a start.)
I just discovered them. It seems the UK societies collect more stories from patients, which I find reassuring.

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