Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Posted by kristem2020 @kristem2020, Jan 2, 2021

Good evening, I’ve recently been diagnosed with PMR. It came on a week after my flu shot October 23, 2020.

Has anyone experienced the same diagnosis after a flu shot?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@janiceem

Your experience seems to mirror mine--got PMR after my 2nd COVID vaccination. No rise in inflammatory markers, so took 4 months to diagnose. I guess I just had a mild case because I only hurt while laying in bed! I was off 10 mg. of prednisone within about a year. BTW, I also eat a whole foods, organic diet, high in antiinflammatory foods. This may have helped me a lot.

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Thanks for the info! I remain hopeful that the tapering will go according to plan and I'll be rid of it....

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Hey! Yes! I am 53 healthy female. 4 days after the flu vaccine. I have always gotten the flu vaccine for work. Never had any issues. Had no underlying health issues at the time of vaccine. I started Kevzara 6 weeks ago. Tapering prednisone. So we shall see. Still some pain in shoulders but trying to let Kevzara kick in

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@karinaph

I feel there is a likely connection with vaccines and PMR. I too had the difficulties ambulating, severe pain and then some vision issues. All after my “ senior” flu shot and the shingrix vaccine. Remember the senior shot is 4x stronger than normal flu shot. This past year, I opted for the regular formulation not the senior dose. It appears from the literature that John has so kindly shared, along with another I read recently, that the adjuvants may be the factors that are triggering this over reaction in some people, like us.
I’m watching closely on our covid vaccines , as to which one may be more suitable. I do want to get the vaccine, but I have my trepidations. I’ll check with my rheumatologist too, and perhaps my endocrinologist too. Please share any insights you may have from your practitioners too. My docs are with UCSF just for reference.

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My PMR symptoms began the very next day afte my second Pfizer Covid jab. Not a big believer in coincidence and anyhow even the CDC is calling a lot of new cases of PMR "vaccine injuries".

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@jpalexander

No one seems to know what triggers the onset of PMR. I know that mine had nothing to do with flu shot as it was 2 months after I got one that I noticed weakness and discomfort in the muscle of my right arm. Next came stiffness and pain in the shoulders and the hip problems..Most of this I figured was old age so I put up with it. Therapy followed for months and then my right hand became swollen and then finally I was so fatigued and began having difficulty getting up from a chair. and I knew I had to see a doctor and find out what was wrong. After blood tests I started taking 20 mgs of prednisone and have .been trying to get off of it ever since. I have lost a lot of hair and my skin has suffered from taking prednisone and I would like to stop taking it one of these days but am going slowly as the last time I tried a lot of my problems returned.

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My PMR was diagnosed a week after a sore throat (the worst I have ever had) and cold. My nephew was diagnosed with PMR after they drained fluid from his knee. A golfing friend had surgery, then Sepsis, then diagnosed with PMR. Several different things have triggered PMR.
I am currently struggling with getting strength back in thighs/calves - legs. I've taken two severe falls in the last two months because of weakness. The Rheumatologist suggested and got me on an infusion of Actemra once a month to get off Prednisone. Off Prednisone now... It is working. Actemra is not a steriod like Prednisone is. I now have an Actemra infusion (doesn't hurt or have many side effects for me), once a month for 12 months (could be longer - we will monitor) until it goes into remission. I just hope it does go into remission. Anyone else have weakness?

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@hopeinal

My PMR symptoms began the very next day afte my second Pfizer Covid jab. Not a big believer in coincidence and anyhow even the CDC is calling a lot of new cases of PMR "vaccine injuries".

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I would like to find more evidence that PMR is caused by vaccine

The VICP progam was formed by US gov so that weak plaintiffs could recover compensation from strong defendants (drug companies) for injuries caused by vaccines.

If you have had disease 6 months you can petition for payment. Some diseases are on a "table" and proof of connection between vaccine and injury is settled. Unfortunately PMR is not on the table and the VICP court has ruled several times that there is no positive proof that PMR can be caused by vaccines.
This disease was so unlike anything I have ever experienced in my 71 years and I had no idea where it had come from until I read that some researchers believe it can be triggered by vaccines. I was such a believer in vaccines that I had forgotten about getting both Covid and flu vaccine about 5 days before the onset of PMR. I have had it about 5 months and will begin to taper off prednisone in 2 months (I was untreated for almost 11 weeks)

Where did you read about the CDC and PMR?

thanks

Jim Gould

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@hblegen

I am a physician, four and five years ago I’ve got PMR about a month after the flu shot in November, the last couple years I got a flu shot and did not get PMR, in January I got the Pfizer vaccine and six weeks later I had PMR flare muscle in my legs and had trouble walking in pain at night, prednisone taper over two months and I’ve been fine since, I know this is an anecdotal report but for myself I am convinced that vaccines have triggered a relapse in my PMR several times

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I am not a physician but I am absolutely convinced that vaccines caused my PMR and I would like to find proof and present a case to the VICP court

Presently no attorney will take my case because VICP court has ruled that there is no proof that PMR can be caused by vaccines

I have about 2.5 years to file a petition and if I can't find an atty I will do it myself (I am an atty in MN)

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@hopeinal

My PMR symptoms began the very next day afte my second Pfizer Covid jab. Not a big believer in coincidence and anyhow even the CDC is calling a lot of new cases of PMR "vaccine injuries".

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My PMR symptoms and unfortunate relapses, lag the triggering event by 6 weeks. For example, I have had Covid twice and 6 weeks afterwards I can’t get out of bed. When you have PMR it is a live virus instigator. I take the Moderna vaccine so no risk of getting PMR from it. And lots of risks, for me, in getting COVID.

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@jimgould

I would like to find more evidence that PMR is caused by vaccine

The VICP progam was formed by US gov so that weak plaintiffs could recover compensation from strong defendants (drug companies) for injuries caused by vaccines.

If you have had disease 6 months you can petition for payment. Some diseases are on a "table" and proof of connection between vaccine and injury is settled. Unfortunately PMR is not on the table and the VICP court has ruled several times that there is no positive proof that PMR can be caused by vaccines.
This disease was so unlike anything I have ever experienced in my 71 years and I had no idea where it had come from until I read that some researchers believe it can be triggered by vaccines. I was such a believer in vaccines that I had forgotten about getting both Covid and flu vaccine about 5 days before the onset of PMR. I have had it about 5 months and will begin to taper off prednisone in 2 months (I was untreated for almost 11 weeks)

Where did you read about the CDC and PMR?

thanks

Jim Gould

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Jim, I don't recall where I read it, but if you ask Google if PMR is considered a vaccine injury, there are lots of results. From what I've read, the flu vaccine is also believed to bring on PMR.

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@verversannjudy

My PMR was diagnosed a week after a sore throat (the worst I have ever had) and cold. My nephew was diagnosed with PMR after they drained fluid from his knee. A golfing friend had surgery, then Sepsis, then diagnosed with PMR. Several different things have triggered PMR.
I am currently struggling with getting strength back in thighs/calves - legs. I've taken two severe falls in the last two months because of weakness. The Rheumatologist suggested and got me on an infusion of Actemra once a month to get off Prednisone. Off Prednisone now... It is working. Actemra is not a steriod like Prednisone is. I now have an Actemra infusion (doesn't hurt or have many side effects for me), once a month for 12 months (could be longer - we will monitor) until it goes into remission. I just hope it does go into remission. Anyone else have weakness?

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Yes, I have weakness and have had several bad falls. 😕

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@jimgould

I am not a physician but I am absolutely convinced that vaccines caused my PMR and I would like to find proof and present a case to the VICP court

Presently no attorney will take my case because VICP court has ruled that there is no proof that PMR can be caused by vaccines

I have about 2.5 years to file a petition and if I can't find an atty I will do it myself (I am an atty in MN)

Jump to this post

I am also convinced that my PMR was triggered by my second COVID Pfizer vaccination. I had the usual pain following the injection, but the pain never went away and got worse within the week. FYI, prior to PMR I was rarely sick--maybe one cold and one flu in 30 years!

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