Hi,
I was on Tymlos for 21 months. My decision to choose Tymlos was not an easy one. However, my doctor told me I had two choices, bad and worse! The bad choice was to take the shots and risk short and/or long term side effects. However, it would lengthen my lifetime. The worse choice was not to take Tymlos and die from a fall! At the time, I was 72 and felt I had a lot more life left in me. Initially, after a bad reaction, I had to stop taking Tymlos for three months. Then, the next three months, I eased into taking the shots every other day to make sure there wasn't any further side effects. For the next 18 months, my husband gave me the shots in a specific area of the abdomen required by Tymlos. That was difficult because the shot could not enter a scar and my stomach was badly scared from a breach pregnancy/birth and two surgeries. Although it was not an easy 21 months, due to new side effects, I finished taking the shots earlier than recommended. I have been on Prolea (two shots every six months, at the hospital) for six years. My score dropped from -4.8 to 2.3. The first year, Tymlos sent me a pen every month at no charge. Then, they refused to continue the treatment for the second year. Thankfully, through Wake Baptist Medical Center, I was able to pick up a sample pen once a month until my treatment was completed. At this time, I have no further side effects. I do hope that this continues for the rest of my life. Given all the complications, would I do it again? In a heartbeat! I hope this information helps you and others who have this challenging decision to make. God bless you and I wish you the best!