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Parkinson's plus Multiple System Atrophy (MSA)

Parkinson's Disease | Last Active: Mar 27 3:01pm | Replies (57)

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@karinneke6

Since feb 17 i got worse. Can hardly stand without 2 people to suppport me. Tremors got worse but i can contol them with meds (prolopa and rivotril). A nurse comes in at evening to put me in bed. I take fludrocortissone (3) for my bloodpressure but. I have orthostatic pressure which means my blood pressure drops when i stand up. A few weeks ago it dropped very low and i lost conscience. I suffer also from double vision, so we bought prisms thanks for your concern!!

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Replies to "Since feb 17 i got worse. Can hardly stand without 2 people to suppport me. Tremors..."

Are you confident in your MSA-C Dx? I think I recall that it was uncertain at one point. I’m so sorry you are having these problems and seem to be on your own for the most part. This has to be one of the cruelest diseases known to man (including ALS, Park + and prion diseases). I always thought it was cancer, but at least with cancer there is hope that you can beat it. I will be praying for you and wouldn’t it be the best if somehow it isn’t MSA. Take care.