1. < Neuropathy
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Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

Interested in more discussions like this? Go to the Neuropathy Support Group.

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bgator | @bgator | Mar 11, 2025
In reply to @roger50 "Yep. Diagnosis of small fibre neuropathy. So painful and crippling. Still chasing appropriate treatment. Hoping to..." + (show)
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Yep. Diagnosis of small fibre neuropathy. So painful and crippling. Still chasing appropriate treatment. Hoping to try spinal cord stimulation. Difficult to convince specialists to implement. Have a new doctor to see soon. Trying abstinence from alcohol. Only just getting by with Palexia for the pain.

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Yea the abstinence of alcohol would definitely help, so they say.

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antelibetta | @antelibetta | Mar 11, 2025
In reply to @fishnuts99 "good! I'm on a low dose currently but it really has reduced the pins,needles and burning...." + (show)
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good! I'm on a low dose currently but it really has reduced the pins,needles and burning. Has not helped the numbness in my toes but the horrible pain is much better. Duloxetine ( brand name Cymbalta) is an anti depressant by development but it helps with neuropathy pain. I've also suffered light headedness/dizziness with my neuropathy and I believe this is also starting to make me feel less like a bobble head. Crossing fingers.

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Could U please tell me the dosage?

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mecha | @mecha | Mar 11, 2025
In reply to @cindi5464 "Please let me know how you make out. In agony with occipital neuroligia, pain spreads from..." + (show)
Profile picture for cindi5464 @cindi5464

Please let me know how you make out. In agony with occipital neuroligia, pain spreads from neck to shoulders, chest, ears head and eyes. It's the worst pain I've ever had. Had 2 neck surgeries never been the same. 2 rods, 6 screws and 2 plates. Going for several nerve blocks Thursday please God let this help me. 😭

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Espero con son sinceridad.que esa intervención sea exitosa y traiga el alivio que necesitas para tu malestar.Abrazo.

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dgjestson | @dgjestson | Mar 12, 2025
In reply to @bgator "Yea the abstinence of alcohol would definitely help, so they say." + (show)
Profile picture for bgator @bgator

Yea the abstinence of alcohol would definitely help, so they say.

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(85-year-old, former "alcohol dependent" male responding.) Stopping daily or numerous weekly alcoholic drinks is mandatory when you have PN! However, I have not seen anything that identifies occasional drinking (like once a week or a few times per month), nor have I personally experienced any increase in my PN symptoms by having a beer once every 2-3 weeks. No alcohol is even better, of course.

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bettyg81pain | @bettyg81pain | Mar 15, 2025

I’m sure there a lot of us on Connect. I’m an 83 female
that neuropathy upended my life; but, I’ve pretty well figured out a routine that gets me out and going now. Just keep experimenting with different prescribed meds and find what works for you.

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arapaho | @arapaho | Mar 15, 2025
In reply to @bettyg81pain "I’m sure there a lot of us on Connect. I’m an 83 female that neuropathy upended..." + (show)
Profile picture for bettyg81pain @bettyg81pain

I’m sure there a lot of us on Connect. I’m an 83 female
that neuropathy upended my life; but, I’ve pretty well figured out a routine that gets me out and going now. Just keep experimenting with different prescribed meds and find what works for you.

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Same with me. It's at the end of a nights sleep that my legs from shins to toes are worse so I get up. Then I can proceed and go on with my day. 73 yrs young!

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bettyg81pain | @bettyg81pain | Mar 16, 2025
In reply to @bettyg81pain "I’m sure there a lot of us on Connect. I’m an 83 female that neuropathy upended..." + (show)
Profile picture for bettyg81pain @bettyg81pain

I’m sure there a lot of us on Connect. I’m an 83 female
that neuropathy upended my life; but, I’ve pretty well figured out a routine that gets me out and going now. Just keep experimenting with different prescribed meds and find what works for you.

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I said a few days ago that I had figured it out. Then why did I have a martini-which I love- last night when I knew I would pay for it with my legs “killing” me today???

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cboydb | @cboydb | Mar 16, 2025

I have non-diabetic neuropathy --'idiopathic' and have for 20 years--I'm 71. I now also have light tingling in my torso and arms. Last coupl of years the numbness in my feet is increasing. I don't have trouble walking but I do Zumba once a week when I can and also a class that has lots of isolated muscle and joint movement. I think keeping the muscles strong and the body flexible helps.

Why are you looking for people with non-diabetic neuropathy?

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nwaluli | @nwaluli | Mar 16, 2025

I am an 81 year old male with non diabetic neuropathy. I think it is from agent orange from combat in Vietnam. The neuropathy started to manifest itself in my late 60s. When I wear close toed shoes for any length of time my feet “burn” pretty badly. I like to play golf and that’s when that “burning” sensation really manifests itself. Does anyone have suggestions on good golf shoes and socks to wear to minimize the neuropathy pain. Also would like any suggestions on good walking shoes for my neuropathy condition. Mahalo for any suggestions. Aloha😀🌈

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