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MDS (myelodysplastic syndrome): When to start treatment?
Blood Cancers & Disorders | Last Active: 8 hours ago | Replies (40)Comment receiving replies
I started showing signs almost two years ago and was diagnosed over a year ago with MDS. My monthly bloodwork has been stable for the year. Therefore I am in the wait and see stage. I have fatigue but listen to my body and just live a slower way of life. The advice I was given was to quit worrying and enjoy life. Hard to do but it really has helped me cope with this disease. 74 and making the most of the situation.
Replies to "I started showing signs almost two years ago and was diagnosed over a year ago with..."
Brenda,
Best wishes to you. Hopefully you can enjoy each day to the fullest and hang in there. Praying you continue to stay well.
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Dear Brenda,
It funny how sometimes somebody can say something to you as little as two words and it makes a major impact.
When my husband was first diagnosed our world fell apart. We laid in bed with each other crying, we started cleaning out our house and throwing our belongings away. At first, we stopped traveling and doing the things we loved.
I am a spiritual person, and it finally dawned on me. God grants us the grace of one day at a time and that is what we all receive. Every day I ask him do you feel good today and thank God it is always a yes. I give thanks and say alright then let us go live life.
Thank you for taking the time and sharing your journey with me. I appreciate it and please stay in touch with me.
Sincerely,
Sherri