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Liver transplant - Let's support each other
Transplants | Last Active: 12 hours ago | Replies (1636)Comment receiving replies
@kmlowe, I'm so happy to read that you are off to a great start! I also went thur a pre evaluation during my initial appointment at my transplant center in Kentucky. I was expecting a consultation to learn if they would accept me as a patient, however, I, too, had a preevaluation evaluation which culminated with a meeting with the liver transplant surgeon who delivered the news that I would need a liver transplant. Evaluation and listing on UNOS followed along with a referral and transfer to Mayo MN where I succesfully received a liver and kidney transplant in 2009.
I'm also sending hugs and hope as you begin your journey. We are all here to walk with you and to answer any questions.
Replies to "@kmlowe, I'm so happy to read that you are off to a great start! I also..."
@rosemarya
After contributing to the NET Neuroendocrine forum for over 2 years, I find the need to ask questions of you and contributors of the Liver Transplant site. The short story is my wife has NET, diagnosed April 2022. She did chemo, had surgery to remove pancreas tail, but it metastasized to her liver. After getting most/all of it out from surgery except the liver, our medical team gave us an option to have her get a liver transplant. After 2 additional opinions, she got her liver transplant January 2025. She needed 3 follow- up surgeries to fix a few things. She is now 2 months and a week from her surgery, and still having fluid accumulating around right lung, (drained 3 times already), and severe shortness of breath. I’m wondering if you have any resources or contacts, who either have had the liquid on the lungs issue, and/or had a liver transplant with NET? Any assistance would be most appreciated ❤️.
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Rosemary @rosemaryabraham
Thank you for your support - I see many of your comments and the clarity and comfort you give to others by sharing your story. You’re an inspiration - someone I’m trying to emulate, but haven’t done as well as I can.
❤️