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MDS (myelodysplastic syndrome): When to start treatment?
Blood Cancers & Disorders | Last Active: Apr 21 10:28am | Replies (43)Comment receiving replies
I'm glad your husband is feeling well and showing no signs of illness. My husband only had the one BMB. It was enough to determine and confirm his diagnosis. I'm sorry they need to do two for your husband.
You'll need to see what your Dr. recommends, but my guess as long as your husband is feeling great, they'll likely put him on a "watch and see" status. That means they'll continue to monitor blood levels, and how he's feeling.
My husband had three heart stents placed in 3/24. He also had vascular procedures to improve blood flow due to peripheral artery disease. He was tired all the time and his hematologist and vascular surgeon felt it would be best for him to start the shots. The hope is to help bring up his hemoglobin and oxygen levels, to help him feel better. His hgb was at 9.5 most of the time. It's come up to 10 at this point. He sees his hematologist tomorrow. We'll see that he says.
Hope this helps. Praying your husband continues to do well!
Good luck!
Gail
Replies to "I'm glad your husband is feeling well and showing no signs of illness. My husband only..."
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Gail, thank you so much for your reply. My husband was diagnosed with MDS with multilineage dysplasia approximately 1.5 years ago. We have been on the wait see status but as I mentioned I believe we are heading into a different chapter of our journey. What caught my attention to your post was regarding starting treatment.
My husband's WBC is 2.8, RBC is 4.8 Hemoglobin is 10.6. Since it looks as though he has started taking meds now, is he feeling better? I have a feeling our hematologist is going to recommend Reblozyl.
I believe my feelings are the same as yours regarding the meds and if they have helped any and the side effects that comes with them. And at what level is the danger zone on when you should actually start. Since your husband has started the meds is he feeling better? Has he had many side effects?
My heart aches every time I think of this journey.
I hope you hear uplifting news today and your husband is feeling better. And for yourself my love and prayers are with you.
Please let us stay in touch with one another sometimes I feel as though we are alone in this journey.
Sherri