Pituitary tumor symptoms: joint, muscle and body aches

Posted by khauert @khauert, Jan 12, 2020

Hi. I am new to this. And not sure I'm in the right category. I was diagnosed with a pituitary tumor in November. However, I have been experiencing terrible joint, muscle and body aches for a year now. No doctor knows why and nobody can confirm its from the tumor. I'm frustrated and becoming very hopeless and depressed. Can anyone with a pituitary tumor relate to body pain?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@colleenyoung

Welcome to Connect, @khauert. I moved both your messages to this discussion and added it to the Brain Tumor group as well the NETs group. I did this so that members could get the full picture and to bring fellow members together, like @ladydove417 @dmedina71 @astaingegerdm @sandysdoves @gemttaz and others who may have experience to share with you about pituitary tumor and joint and muscle pain and body aches.

You can also read about others with pituitary tumors in this discussion
- Looking for others with Pituitary Adenoma https://connect.mayoclinic.org/discussion/i-like-to-now-if-their-is-anyone-who-has-been-diagnosed/

Are you getting treatment at this point to help manage the ache and pain? How do you manage it? Might it be related to medication you're taking?

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In November 27 2004 I woke up after midnight with a severe headache
I knew after about an hour that it was not your normal severe headache it hurt so bad I had to go to The E R
Within a couple hours of being in E R I started seeing double vision instead of 1 TV I saw 2 then my eye lid completely shut n I lost control of it
They ran several tests n found the Pituitary tumor in my forehead that put pressure on my eye and the found Cancer in my Colon luckily my tumor in my head had nothing to do do wit Pituitary Tumor doctors monitored it for a year and wasn't groing anymore so they left it alone 20 yrs later I'm starting to have that same headache everyday bones are hurting developed Heart Problems just all sorts of problems an I in danger of something possibly developing n going wrong with me body aches n all the symptoms developing
I'm getting worried because I didn't know bones and joints would ache from it and heart problems signed rdele1567 I'm concerned what can I do

REPLY
@rdele1567

In November 27 2004 I woke up after midnight with a severe headache
I knew after about an hour that it was not your normal severe headache it hurt so bad I had to go to The E R
Within a couple hours of being in E R I started seeing double vision instead of 1 TV I saw 2 then my eye lid completely shut n I lost control of it
They ran several tests n found the Pituitary tumor in my forehead that put pressure on my eye and the found Cancer in my Colon luckily my tumor in my head had nothing to do do wit Pituitary Tumor doctors monitored it for a year and wasn't groing anymore so they left it alone 20 yrs later I'm starting to have that same headache everyday bones are hurting developed Heart Problems just all sorts of problems an I in danger of something possibly developing n going wrong with me body aches n all the symptoms developing
I'm getting worried because I didn't know bones and joints would ache from it and heart problems signed rdele1567 I'm concerned what can I do

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@rdele1567, that's a double whammy - pituitary tumor and colon cancer at the same time.

Have you had treatments for either? Both? How are you doing?

REPLY
@rdele1567

In November 27 2004 I woke up after midnight with a severe headache
I knew after about an hour that it was not your normal severe headache it hurt so bad I had to go to The E R
Within a couple hours of being in E R I started seeing double vision instead of 1 TV I saw 2 then my eye lid completely shut n I lost control of it
They ran several tests n found the Pituitary tumor in my forehead that put pressure on my eye and the found Cancer in my Colon luckily my tumor in my head had nothing to do do wit Pituitary Tumor doctors monitored it for a year and wasn't groing anymore so they left it alone 20 yrs later I'm starting to have that same headache everyday bones are hurting developed Heart Problems just all sorts of problems an I in danger of something possibly developing n going wrong with me body aches n all the symptoms developing
I'm getting worried because I didn't know bones and joints would ache from it and heart problems signed rdele1567 I'm concerned what can I do

Jump to this post

Hello @rdele1567

I see that this was your post on Mayo Connect. I want to welcome you. Mayo Connect is a forum where I and many other members, have come feeling confused and not well. I see that these symptoms began in November. What type of specialists have you seen? Has there been any surgery or other follow-up regarding the colon cancer?

I look forward to hearing from you again. Will you post as it is convenient?

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