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My Experience on Evenity for Treating Osteoporosis
Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".
I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.
The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.
My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.
My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.
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Hi: I am a 70-year-old woman facing the Evenity decision. I am a cancer survivor who never fully regained her energy level, but I do a lot of walking and exercise every day. I am concerned because I weigh under 100 pounds and typically do not tolerate medication well. Are there any other lightweights out there who have tried it?
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I'm 72, started Evenity 8 months ago at a steady 110 lb. and take no other medications and with spine dexa -5. One thing I've learned from following this group, and one on Facebook, is that side effects are unpredictable. I've tried every other generation of osteoporosis meds starting at age 40 and this is the first one I've tolerated. I've gained a solid 7 lb, mostly in my abdomen, where I get the shots. I have fatigue and random body aches and headaches, but I'm retired, so I can work around those and prioritize my exercise and walking routines. We've all got fingers crossed that this treatment will be effective. You won't know if you don't try and you can stop if you find it unbearable. Good luck with your decision and your journey. I've found these support groups to be helpful.
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1 ReactionChristina, you are wonderful. Thank you so much for your thoughtful reply. I too have been through the whole range of osteo drugs with little if any success. Having already suffered three compression fractures, I am concerned about not trying anything. Thank you so much.