← Return to How long can we be on azacitidine (Vidaza)?

Discussion
Comment receiving replies
@loribmt

Good morning, @dax1million. I’ve said this before to other members, that it’s a privilege to be able to help answer questions and concerns, where I can, with blood cancer or stem cell/bone marrow transplantation. I’m happy to be able to offer lifelines to anyone going through these uncertain times. I’m basically paying it forward for the outstanding care I received and all the information and experiences I gleaned along the way. ☺️

I know you’re very concerned about the upcoming chemo for your husband because of his low platelets going into this treatment. The end goal would be to get the cancer under control so that his body can resume making healthy blood cells and he no longer would need them.

I recently read an article on Vidaza. (link below) But the first paragraph talks about the applications for this drug: “… myelodysplastic syndromes: refractory anemia or refractory anemia with ringed sideroblasts (if accompanied by neutropenia or thrombocytopenia or requiring transfusions.”
https://news.cancerconnect.com/treatment-care/frequently-asked-questions-about-vidaza-azacitadine#:~:text=Vidaza%20belongs%20to%20a%20group%20of%20drugs%20called,such%20as%20cancer%20cells%2C%20ultimately%20causing%20cellular%20death.
I can’t highlight the passage but your husband has thrombocytopenia…having below normal platelets. This drug is approved to accommodate patients who already are dealing with low platelets. Doesn’t mean they won’t go lower for a while yet but it looks as though this is minimized with Vidaza.
When you read further down on the page, under the “less common side effects” it lists lower platelets as a lesser side effect.

He will most likely need platelet infusions for a while yet until the treatment starts working. So don’t lose hope that this will turn things around! It doesn’t work over night. If they go low, he’ll have more platelets. I can’t tell you how many transfusion of red blood/platelets I had over the course of treatments. It’s what we do in the interim until the meds kick in and do their job.
You’re both going to get through this!! To do nothing is to, well, do nothing! This is a step in the right direction. ☺️

Jump to this post


Replies to "Good morning, @dax1million. I’ve said this before to other members, that it’s a privilege to be..."

Thank you 🙏 we so appreciate your information any hopeful words helps. You are a true blessing to this site. God is truly using your help to people in their darkest time. Thank you again