I’m being interviewed by NBC Chicago on long Covid this week. Help

Standord has expanded its chronic fatigue syndrome clinic to be a Long Covid and CFS clinic. I believe it is studying and treating both types of patients as there is significant overlap.

I agree with everything both of you said. Especially how it affects not only you but everything around you. Friends, family, work and anything else you did in life. It’s definitely a life changer!

I developed hypertension that can not be controlled by any medication. I never had high blood pressure in my life until I got long covid .I have low grade fevers every day up to 100.7. I also have chronic fatigue . I have short term memory loss. I had extreme weight loss. I weigh 107 pounds . When I got LC I lost 30lbs and I was not over weight. So I went down to 100lbs. I have gained 7 pounds in 2years.

You are the HERO of millions of us who became ill with Covid!!! The list of symptoms is as long as there are people affected. If possible, your mentioning what Is obvious to many of us but is often unknown to doctors and those unaffected…namely the sadness, isolation, lack of answers and lack of definitive helpful treatment. Many of us are treated as lab animals because care givers also either never heard of Covid or will not admit they simply do not know what might be helpful. Hopefully, at least one medical professional is documenting wold-wide findings to provide answers and treatments for the next generation…if not sooner. Those of us senior citizens are unlikely to see a true cure, but we are hopeful for the those who follow. Our lives have been altered beyond description. May you get MORE than “five seconds!”

Thanks, ericy210 for being our spokesperson. It'll take a lot of energy and I hope you're getting some rest to prepare. I agree with all the other comments and would add this: From what I've learned (since dx in 2023), one of the hardest parts is the gaslighting and lack of understanding, not just from doctors(!) but from close friends and family. Many people just don't get it and say stuff like "You LOOK good, so how can you STILL be sick? Maybe you need some lavender aromatherapy cuz that works for me ..." etc. etc. Much more information needs to be blasted to the general public since we can't be explaining this over and over... it takes too much energy. I'll be watching all week and thanks for taking this on for the rest of us! (Bottom line: More publicity, please!)

You continue to be a SHINING STAR in the on-going battle to find answers, raise more awareness and acknowledging this unique illness unlike any we’ve experienced.
MANY “likes, helpful and hugs” to you for asking for input. You deserve a round of applause and a standing “O.” ‘Nuff said!!! (Donnie46)

I think a look at healthcare workers, I am/was an ER nurse, that were infected and now have long covid would be helpful. We stepped up, walked directly into harms way and saved lives when the entire world was shut down and the same world has forgotten us. I got sick in 2020, lost the 40-year career I love and feel just tossed aside.

We need a voice for us! There are too many of us with no answers, no hope of getting better. We feel this way because we hear nothing on any research or progress to help us. This list of symptoms are so long & diverse where do we all begin. There begins to be a feeling of hopelessness without a voice & no one to hear us!!

Cannot agree more with all of these posts. Not that it makes any difference to me at this point, hopefully, many will think twice about getting the vaccinations. Yes, for many, it probably was a beneficial choice. HOWEVER,I have been afflicted with the negative repercussions from, 'the jab'.
Weakness, FATIGUE 24/7, brain fog, GI upset, DIZZINESS, muscle cramps, impaired balance,....and THIS list is just the beginning.
Be very judicious about your health.

I live in Chicago as well if you would like to talk