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← Return to New to Hydrea for ET
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I was diagnosed with ET on Feb 3 due to very high platelets and some symptoms that I took as normal. Currently I am on HU 500 daily and low dose aspirin. They also did some genetic testing and waiting for some results. On March 17 th I will have a bone marrow biopsy and then April 7th a consult to discuss a plan. After 3 weeks on HU most aches have disappeared, headaches and blurry vision and my platelets have gone down.
Presently I am in Az where I have found the HU is causing sun sensitivity and some burning on my inner thighs after riding my horse and biking. Walking my dogs lessens it.
We return to Wisconsin shortly where there isn’t much hot weather now.
This was quite a shock to get this diagnosis since I was just going in to check my vitamin D level for my prolia shot. I was feeling normal so I thought.
I’ll take this diagnosis and medicine if it means what the Hemotology doctor says that I can live for many more years. I am 73.
I’ve been reading this blog for a few weeks and finally decided to comment. I really appreciate all the enteries since the information really helps adjust to the diagnosis of cancer.
Replies to "I was diagnosed with ET on Feb 3 due to very high platelets and some symptoms..."
Hi, I’m 58 and was diagnosed with PV just over two years ago and put on HU Immediately. I too had extreme sensitivity to sun and also tooth pain. As months went on, I slowly adjusted and when the dosage was lowered those symptoms pretty much went away. PV can cause all kinds of nueropathy so the tooth pain still pops up occasionally. I get labs once a month and need phlebotomies every ten weeks or so. Good luck and good health!
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I’m glad you are doing okay with the Hydrea and that it is helping. I have a cabin in Northern WI and spend lots of time there year round. We can get some good summer sun and I love floating on the lake so I’m going to still try that with sunscreen and a big hat. I too was pretty shocked that I have something wrong me because I feel great. Who knew? All could be worse so I’m thankful there is a treatment.