Biliary Strictures after liver transplant

@preetismiles, I know that @webiondev posted about biliary strictures after liver transplant a few years ago.

Smiles, are you experiencing bile duct complications after your a liver transplant? What symptoms did you experience? How are they being managed?

I am about 6 months post liver transplant and had 3 ERCP to manage biliary strictures using stents. I don’t know how long it will take to be stents free so curious to know others experience.

I too am about six months past liver transplant and have had 4 ERCP procedures. Unfortunately I went septic 5 days after the first stent insertion.

I am curious what others have experienced and what to expect. Since my last procedure I have been fatigued - Drs are monitoring.

too am about six months past liver transplant and have had 4 ERCP procedures. Unfortunately I went septic 5 days after the first stent insertion.

I am curious what others have experienced and what to expect. Since my last procedure I have been fatigued - Drs are monitoring my blood levels. Recently I’ve been very itchy. They have increased me from 2 to 3 Ursodiol daily.

I have another stent evaluation via ERCP in a month.

@brin, that must've been scary. How did you recognize the symptoms of going septic? Do you live near your transplant center or did you go to a local hospital? How are you doing now?

We live 20 minutes from transplant center.
The scary part is that two hours previously I was tired and itchy but had no fever and had normal BP. I woke up feeling really bad and asked my partner to take me to the emergency department of the transplant center. Ambulance came and I crashed in the ambulance and by the time I arrived at the hospital 20 minutes later I was septic.
It was lucky I got there in time. Emergency endoscopy 24 hours later after I had been intubated. They found the problem. Two weeks later I was well enough to go to a local rehab facility and three weeks later I was discharged.

I had my surgery 6 years ago I had 3 ERCP surgeries - that was it and have never had any issues since.

Has anyone reached the point where you have had so many ERCP procedures that have not solved the stricture that your team is looking for another solution to this problem? And if so what other procedures did they try?

Update

Unfortunately I have had 6 ERCP in the 10 months since transplant - for various reasons and various stents, etc - and it is making decision making on traveling difficult because I do not want to be too far from my local team.

Anyone familiar with stubbornly recurrent strictures and strategies of coping with it?

Thanks

Hi. In the year and a half since transplant I have had 4 trips to Mayo AZ and 2 procedures in my home state. Stenosis in arteries, narrowing arteries, bile duct issues, angioplasty , a blot clot , etc. . But after this last stent now all seems to be doing ok. Mayo and my insurance co just kept trying till all was good. My wife loves to travel but this last year and a half only for medical stuff. But the way I look at it beats the old liver with liver cancer for me. Hope things resolve for you (---: