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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: May 5 2:58pm | Replies (1052)

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@gingerw

@lisamichelleely Well, at 70 we usually are not as energetic as we were at 50! Generally, good diet and mindful living can go a long way to helping us. Yes, MGUS can be an odd condition, but as you have read here, many of us live a long time with no progression of this condition. I hope you can wrap your head around the fact that as you have this diagnosis, it doesn't need to be a source of lack of energy. Our minds sometimes play tricks on us, leading us to think the worst of things. It doesn't need to be that way.

What bleeding source are you speaking of? Is this the condition they were testing for when they discovered the MGUS? If so, have they narrowed that down for you?
Ginger

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Replies to "@lisamichelleely Well, at 70 we usually are not as energetic as we were at 50! Generally,..."

Hello! I actually have an upper and lower GI procedure tomorrow morning; I’ve had three previous procedures to try and identify the source of my bleeding. Perhaps it’s a lesion that splits open then “heals” has been mentioned. It’s been tricky to navigate as I’m in ER more often than I’d like to be for blood transfusions. Doc doesn’t think it’s a bone marrow issue, although sometimes I need blood and I’ve had no bleeding, so hopefully will know more tomorrow! I do as much as I can, while I can! It takes a bit to bounce back from whatever this is. Literally sucks the energy from me. Fingers crossed!