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New to Hydrea for ET

Blood Cancers & Disorders | Last Active: Apr 12 5:25pm | Replies (96)
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@stickball1

Interesting that your platelet increase was identified after a cardiology procedure. If I may ask, what was the procedure, and were any blood transfusions involved.
If you’ve read my previous posts, my platelet issue manifested itself shortly after triple bypass surgery and the administration of several units of blood. My prior (pre-surgery) blood value history was unremarkable.
No physician, and I’ve spoken to many, can confirm or deny whether or not my ET / JAK-2 issue is result of a blood transfusion. In any event, it is what it is and I have to deal with it.

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Replies to "Interesting that your platelet increase was identified after a cardiology procedure. If I may ask, what..."
nohrt4me | @nohrt4me | Mar 2 12:02pm

I had a trans-esophogeal echogram (TEE) to determine severity of bad mitral valve. No transfusions ever.

My platelets were flagged high since 2011, but dismissed as "stress." The absolute gem of a cardiology nurse said, "Take this to the cardiologist, and if it's not in his bailiwick, ask your GP." She wasn't being an alarmist, but I could tell she felt it needed to be looked into.

I am not going to dismiss transmission thru blood transfusion. ET patients are warned not to give blood or organs in case of transmission.

I will need a mitral valve repair, but only if the docs and insurance agree to the transcath procedure. That will not involve blood products.

You might ask if yr doc has sent your patient history to a research database. The more patterns they can identify in patients, the more targeted the research can be.

I'm sorry anybody gets this diagnosis whatever the cause.

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