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Porphyria Cutanea Tarda (PCT): Any experiences?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (15)
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@colleenyoung

@chriseliz, I moved your post to this existing discussion:
- Porphyria Cutanea Tarda (PCT): https://connect.mayoclinic.org/discussion/porphyria-cutaneous-tarda/

I did this so you can read previous posts and connect with members like @donnasa @jfmaddog @ouchelp220 @griffin2 and others who have experience with porphryica cutanea tarda.

Chriseliz, what treatment helps you manage PCT?

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Replies to "@chriseliz, I moved your post to this existing discussion: - Porphyria Cutanea Tarda (PCT): https://connect.mayoclinic.org/discussion/porphyria-cutaneous-tarda/ I..."
chriseliz | @chriseliz | 1 day ago

I have only been diagnosed with PCT for a year I was advised to use SPF 100 sunscreen always. And I am to reapply it every two hours. The only skin I have exposed are my hands and face including my ears which have been affected by the sun. I have had four phlebotomies so far which have brought my ferritin level down. I am scheduled for more. I'm trying to adjust to a different lifestyle
which is difficult at times but I hope to adapt and remain happy.

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