1. < Liver Cancer

Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Posted by egoodies @egoodies, Aug 14, 2023

Anyone currently battling bile duct cancer? I would love to speak to discuss your experiences. I was just recently diagnosed in June.

Interested in more discussions like this? Go to the Liver Cancer Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 9 5:13pm
In reply to @mscluppy "Thank you. Unfortunately because of the size of his spot they can't do robotic surgery. He..." + (show)
@mscluppy

Thank you. Unfortunately because of the size of his spot they can't do robotic surgery. He will be having a port put in next week and then hopefully start chemo soon after. It's been a slow process or it seems that way to me. I am looking forward to meeting with the oncologist and getting a lot of questions answered. Thank you for your response.

Jump to this post

@mscluppy, how did it go with getting the port installed? Has your husband started treatment? How are YOU doing?

REPLY
1 reply
mscluppy | @mscluppy | Feb 9 6:11pm
In reply to @colleenyoung "@mscluppy, how did it go with getting the port installed? Has your husband started treatment? How..." + (show)
@colleenyoung

@mscluppy, how did it go with getting the port installed? Has your husband started treatment? How are YOU doing?

Jump to this post

The port went in ok. We have an appointment on the 20th with the oncologist where he will have treatment. We will know then when he will start his chemo.

REPLY
journey2025 | @journey2025 | Feb 13 3:33pm
In reply to @demooretucson "Dear @journey2025 In October 2024, I had a radical bile duct resection that included a Roux-en-Y..." + (show)
@demooretucson

Dear @journey2025

In October 2024, I had a radical bile duct resection that included a Roux-en-Y hepaticojejunostomy and other surgical procedures at Mayo Rochester for my cholangiocarcinoma. My family and I could not be more pleased with the surgery, recovery, and outcome.

Dan

Jump to this post

Thank you for sharing positive words. Congratulations on your fight and journey ❤️

REPLY
elizabettagrace | @elizabettagrace | Feb 28 3:53pm
In reply to @colleenyoung "Welcome, @lorid01. Your story offers hope. I'm encouraged that you are living your life and post..." + (show)
@colleenyoung

Welcome, @lorid01. Your story offers hope. I'm encouraged that you are living your life and post treatment feel great with no limitations. I think it is perfectly normal to think, even if only periodically, about a possible recurrence or return somewhere else.

I'm tagging fellow members like @afrancesca @kjrita @egoodies @jerrydrennan @kennym who can share their experiences too.

Lori, how often do you have follow-up appointments?

Jump to this post

Colleen can you include me in your group of cholangiocarcinoma patients /caregivers? My husband was diagnosed a month ago. I would really like to connect with some people who have been through this who can help us and give us some guidance. Thank you so much, Elisabetta

REPLY
2 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | 5 days ago
In reply to @elizabettagrace "Colleen can you include me in your group of cholangiocarcinoma patients /caregivers? My husband was diagnosed..." + (show)
@elizabettagrace

Colleen can you include me in your group of cholangiocarcinoma patients /caregivers? My husband was diagnosed a month ago. I would really like to connect with some people who have been through this who can help us and give us some guidance. Thank you so much, Elisabetta

Jump to this post

@elizabettagrace, of course. By posting here, you are included. This must be all so new for both of you. And scary.

How are you and your husband doing? What treatments will your husband be having?

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | 4 days ago
In reply to @elizabettagrace "Colleen can you include me in your group of cholangiocarcinoma patients /caregivers? My husband was diagnosed..." + (show)
@elizabettagrace

Colleen can you include me in your group of cholangiocarcinoma patients /caregivers? My husband was diagnosed a month ago. I would really like to connect with some people who have been through this who can help us and give us some guidance. Thank you so much, Elisabetta

Jump to this post

@elizabettagrace, I think you might also appreciate joining this related discussion and connecting with @mscluppy here:
- Husband recently diagnosed with Cholangiocarcinoma and had no symptoms https://connect.mayoclinic.org/discussion/husband-recently-diagnosed-with-cholangiocarcinoma-and-had-no-symptoms/

REPLY
1 reply
mscluppy | @mscluppy | 4 days ago
In reply to @colleenyoung "@elizabettagrace, I think you might also appreciate joining this related discussion and connecting with @mscluppy here:..." + (show)
@colleenyoung

@elizabettagrace, I think you might also appreciate joining this related discussion and connecting with @mscluppy here:
- Husband recently diagnosed with Cholangiocarcinoma and had no symptoms https://connect.mayoclinic.org/discussion/husband-recently-diagnosed-with-cholangiocarcinoma-and-had-no-symptoms/

Jump to this post

I am here to help support or answer any questions I can. Believe me sharing has been awesome for me so I am happy to help if I can.

REPLY
View MoreView Less
Please sign in or register to post a reply.