Same. First they said CIDP. BUT when nerve and muscle biopsy done. Said no. Now saying generic Lupus Polyneuropathy. Committed to say rare unknown disorder including a couple different autoimmune disorders
I am experiencing the same thing. Full body tingling/pins and needles, with kind of sudden onset. I do not have deficiencies and by all account am a very healthy 37/F. I have an appointment with a neurologist on Monday. Where you prescribed any medications?
Hello! What did the neurologist say? My daughter is experiencing whole body (except face and neck), for 3 weeks now. She had a brain CT at the ER and that was normal. She has an appointment with a neurologist tomorrow.
Hope you have some answers!
Did you ever figure out what caused your full body numbness? I have this and I'm really scared but I also have deficiencies so I don't know what is what I was diagnosed with small fiber neuropathy.
Hello! I still have not figured out what it is, but it may be small fiber neuropathy. Do you have an Autoimmune Disease, Have Covid or are you insulin resistant? I am trying to figure out if possibly one of these things is bringing it on. I don't have diabetes, but am pre diabetic because of either covid or whatever brought all of this on. Maybe an undiagnosed Autoimmune. I have had thyroid disease for a long time, but I have many symptoms of NeuroSjogrens.We also have tons of Lupus in the Family.
Hello! I still have not figured out what it is, but it may be small fiber neuropathy. Do you have an Autoimmune Disease, Have Covid or are you insulin resistant? I am trying to figure out if possibly one of these things is bringing it on. I don't have diabetes, but am pre diabetic because of either covid or whatever brought all of this on. Maybe an undiagnosed Autoimmune. I have had thyroid disease for a long time, but I have many symptoms of NeuroSjogrens.We also have tons of Lupus in the Family.
If you are in the pre diabetic category like I am, you might want to look into the Metabolic Syndrome. It does have a lot of connections with autoimmune and other conditions like neuropathy. Here are a few references:
If you are in the pre diabetic category like I am, you might want to look into the Metabolic Syndrome. It does have a lot of connections with autoimmune and other conditions like neuropathy. Here are a few references:
Thankyou so much! I do think it is some kind of Autoimmune/Metabolic disease. I was in such good shape before this happened. I know you can still get pre diabetes even if you really take care of yourself though. I think this was brought on by covid/Autoimmune. I must be presenting different Than most people though because the Best Doctors in my area just can't figure it out.
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@bdebarge2022 Cleveland Clinic has a good article on psoratic arthritis:
https://my.clevelandclinic.org/health/diseases/13286-psoriatic-arthritis#prevention
It is estiamted that about 200,000 people in the US have PsA without having psoriasis. There is no test for PsA so a lot goes undiagnosed..
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1 ReactionHello! What did the neurologist say? My daughter is experiencing whole body (except face and neck), for 3 weeks now. She had a brain CT at the ER and that was normal. She has an appointment with a neurologist tomorrow.
Hope you have some answers!
Hello! I still have not figured out what it is, but it may be small fiber neuropathy. Do you have an Autoimmune Disease, Have Covid or are you insulin resistant? I am trying to figure out if possibly one of these things is bringing it on. I don't have diabetes, but am pre diabetic because of either covid or whatever brought all of this on. Maybe an undiagnosed Autoimmune. I have had thyroid disease for a long time, but I have many symptoms of NeuroSjogrens.We also have tons of Lupus in the Family.
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1 ReactionIf you are in the pre diabetic category like I am, you might want to look into the Metabolic Syndrome. It does have a lot of connections with autoimmune and other conditions like neuropathy. Here are a few references:
Diagnosis and Management of the Metabolic Syndrome
https://www.ahajournals.org/doi/10.1161/circulationaha.105.169404
The metabolic syndrome – What is it and how should it be managed?
https://journals.sagepub.com/doi/full/10.1177/2047487319886404
The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/
Metabolic syndrome as a risk factor for neurological disorders
https://pubmed.ncbi.nlm.nih.gov/21997383/
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1 ReactionThankyou so much! I do think it is some kind of Autoimmune/Metabolic disease. I was in such good shape before this happened. I know you can still get pre diabetes even if you really take care of yourself though. I think this was brought on by covid/Autoimmune. I must be presenting different Than most people though because the Best Doctors in my area just can't figure it out.
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