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New to Hydrea for ET

Blood Cancers & Disorders | Last Active: Apr 12 5:25pm | Replies (96)
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@williamsjen

Thanks for the information my numbers went down from 1100 to 743 but now went up to 768 she wants me to start taking 2 500mg away. Seems like a lot, I will try it and see how it does until I see her next month. I had no problems with the 500mg

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Replies to "Thanks for the information my numbers went down from 1100 to 743 but now went up..."
debhammel | @debhammel | Feb 28 7:21am

I have been on 2 500 mg capsules since I was diagnosed in November, 2023. I started taking it every day and am now 4 days on, 3 days off each week. My platelets dropped from almost 800 to right around 200 and I have been stable for about 6 months. My only side effect was some hair loss - not enough that anyone would notice but me. It now seems to be growing back. Hopefully you won't have side effects on the higher dose and since you did respond to the lower dose a higher one could do the trick. Good luck!!

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