My Journey with PMR: Listening to my body.

Posted by tiateacake @tiateacake, Jul 28, 2024

When I started this journey in May I kept getting told listen to your body and now I understand. Interrupted sleep last night due to loud fireworks so feeling tired this morning. The old me would have shrugged off this feeling and gone for a jog and gym later. But I will never ever forget that pain of not being able to move any part of my body or sit on the toilet. As for getting dressed, well that was a joke wasn’t it. So hubby taken dog out and I am having an easy day. Never thought I would turn into a wise owl. Tomorrow is another day.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

After managing to sort out the annoying flare last week I decided to not add a half mg onto this months dose. Still getting a few low moments esp in the afternoons, luckily the sun has been shining later in the day so I grab the dog’s lead and we go walkies. May even have a paddle in the cold sea tomorrow and that always makes me feel good. In four weeks I will definitely do at least a week of 2.5mg mainly because I have so many 5mg left over and they are easy to cut in half. See how it goes then either stay on that dose or down to 2mg for the month. Either way fingers and paws crossed the end is in sight.

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