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Neuropathy: What works and what are scams?
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
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Here's a discussion started by @kdks99 on Journavx (suzetrigine) - https://connect.mayoclinic.org/discussion/i-am-starting-a-new-discussion-about-suzetrigine-a-novel-drug-for-pain/
I went through about 10-15 medicines including gabapentin 2400mg/day, nerve pain meds, qutenza wrap, I did the Spinal cord stimulator test, it didn’t work much. Tried the B12 regiment. I tried the TENS for only a month, I saw the response above about going longer. I’ll ask my doctor about Journvax. My insurance co gave me some possible alternatives Fentanyl (apparently it’s used for pain),Methodone which my pain clinic won’t do and most pharmacies won’t provide), Hydromorphone which is just an opioid, Uhggg!!
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1 ReactionYesterday, I ate a piece of very sweet key lime pie & within minutes my feet were in agony & I could barely walk. My wife suggested I drink a lot of water so I drank 2 liters in the early afternoon & another liter in the early evening plus a 1/2 liter of Perrier with dinner. After dinner I was relieved of almost all of the discomfort, still a bit numb of course, but not bad. I woke up this morning & my feet feel better still.
There’s a lesson here for all of us - stay hydrated!
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