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Side Effects of Mavacamten (Camzyos)

Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 15 3:51pm | Replies (65)

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@deanna529

My surgery was back in 2017. I was in the hospital 2 weeks. Slow recovery. No, my heart is still not functioning the way a normal heart would. Probably never. They told me that. They could not shave it all the way down...Thus the need to try Mavacamten once it was approved by the FDA. Give it time. Your BP was probably up because you are anxious. I get like that. 🙂 I gave it 6 months before I bailed. Your quility of life is most important.
You may not need even open heart surgery. If the Mavacamten works...you will have a new lease on life. I did not give up...I even went on a clinical trial...Remember they did not have cardiac mysosin inhibitors back in 2017.
Message me any time 🙂

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Replies to "My surgery was back in 2017. I was in the hospital 2 weeks. Slow recovery. No,..."

Thank you for the encouragement! It sounds like you have had a tough time with this. I hope you have good quality of life now.