It is NORMAL to need more O2 when exerting yourself—exercising, walking (which is exercise), even showering/bathing. Talk to your provider about what level of O2 you should maintain with your oximeter and try to stay in that range, even when it means bumping up your setting on your machine so you can exercise and carry out activities of your life.
It is NORMAL to need more O2 when exerting yourself—exercising, walking (which is exercise), even showering/bathing. Talk to your provider about what level of O2 you should maintain with your oximeter and try to stay in that range, even when it means bumping up your setting on your machine so you can exercise and carry out activities of your life.
Thanks so much . I am a little new to this . I have ILD and home after a bout of pneumonia in the hospital . I guess the bottom line is I am scared and depressed at the thought of oxygen 24/7 . So thanks for responding
Thanks so much . I am a little new to this . I have ILD and home after a bout of pneumonia in the hospital . I guess the bottom line is I am scared and depressed at the thought of oxygen 24/7 . So thanks for responding
Hey, give your body time to recover! Often it can take weeks or even months for a full recovery. Use as much O2 as your body wants and hopefully as it gets more fully healed, your O2 needs may decline. I am guided by my oximeter—want to keep my brain & organs healthy.
uhh, I was in this situation last year.
Noone told me how long I would have to use O2, that it won't improve
due to irreversible lung damage, shown on CT.
But the machine was "rented" and at one time I saw somewhere that it was
rented for a year. So they probably did know it, but didn't tell me.
Nor did they tell me about the BSI and the bad prognosis on BE.
Search the web for ILD . Wikipedia is always a good start. (IMO)
Thanks so much . I am a little new to this . I have ILD and home after a bout of pneumonia in the hospital . I guess the bottom line is I am scared and depressed at the thought of oxygen 24/7 . So thanks for responding
I went on oxygen recently. I'm still scared. After a lot of tests, they said I have PULMONARY ARTERIAL HYPERTENSION. It is a big adjustment. But gets easier.
Wondering if anyone has this problem . Do not need oxygen while sitting but do need it when ambulatory and exerting myself .Dont know how or if it will or can improve . Thoughts ??
Thanks so much . I am a little new to this . I have ILD and home after a bout of pneumonia in the hospital . I guess the bottom line is I am scared and depressed at the thought of oxygen 24/7 . So thanks for responding
I am on 02 24/7 my doctor told me to increase it to 3 leters when I am walking and when I sit down to go back to 2 leters . Thats usually what the dr tells you Good luck
Wondering if anyone has this problem . Do not need oxygen while sitting but do need it when ambulatory and exerting myself .Dont know how or if it will or can improve . Thoughts ??
You don't mention why you were put on oxygen.
I first was put on oxygen for sleep after lung cancer surgery (3-month prescription). Had a second lung surgery and again had 3-month prescription. Then I had radiation and experienced radiation-induced pneumonitis. My pulmonary function tests stayed down, and I was diagnosed with pulmonary fibrosis so now I have a permanent prescription for oxygen for exertion and sleep. I don't need oxygen while sitting.
It depends on the reason you were put on oxygen. In my case, pulmonary fibrosis is a permanent disease.
I went on oxygen recently. I'm still scared. After a lot of tests, they said I have PULMONARY ARTERIAL HYPERTENSION. It is a big adjustment. But gets easier.
I have an ILD called NSIP for which I was on Ofev and going great … then double pneumonia and now on oxygen ….. so wondering if the lungs can ever go back to not needing extra oxygen
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It is NORMAL to need more O2 when exerting yourself—exercising, walking (which is exercise), even showering/bathing. Talk to your provider about what level of O2 you should maintain with your oximeter and try to stay in that range, even when it means bumping up your setting on your machine so you can exercise and carry out activities of your life.
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2 ReactionsThanks so much . I am a little new to this . I have ILD and home after a bout of pneumonia in the hospital . I guess the bottom line is I am scared and depressed at the thought of oxygen 24/7 . So thanks for responding
-
Like -
Helpful -
Hug
2 ReactionsHey, give your body time to recover! Often it can take weeks or even months for a full recovery. Use as much O2 as your body wants and hopefully as it gets more fully healed, your O2 needs may decline. I am guided by my oximeter—want to keep my brain & organs healthy.
uhh, I was in this situation last year.
Noone told me how long I would have to use O2, that it won't improve
due to irreversible lung damage, shown on CT.
But the machine was "rented" and at one time I saw somewhere that it was
rented for a year. So they probably did know it, but didn't tell me.
Nor did they tell me about the BSI and the bad prognosis on BE.
Search the web for ILD . Wikipedia is always a good start. (IMO)
-
Like -
Helpful -
Hug
1 ReactionI went on oxygen recently. I'm still scared. After a lot of tests, they said I have PULMONARY ARTERIAL HYPERTENSION. It is a big adjustment. But gets easier.
Wondering if anyone has this problem . Do not need oxygen while sitting but do need it when ambulatory and exerting myself .Dont know how or if it will or can improve . Thoughts ??
I am on 02 24/7 my doctor told me to increase it to 3 leters when I am walking and when I sit down to go back to 2 leters . Thats usually what the dr tells you Good luck
You don't mention why you were put on oxygen.
I first was put on oxygen for sleep after lung cancer surgery (3-month prescription). Had a second lung surgery and again had 3-month prescription. Then I had radiation and experienced radiation-induced pneumonitis. My pulmonary function tests stayed down, and I was diagnosed with pulmonary fibrosis so now I have a permanent prescription for oxygen for exertion and sleep. I don't need oxygen while sitting.
It depends on the reason you were put on oxygen. In my case, pulmonary fibrosis is a permanent disease.
There are different types of pulmonary hypertension depending on the cause.
https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697
I have an ILD called NSIP for which I was on Ofev and going great … then double pneumonia and now on oxygen ….. so wondering if the lungs can ever go back to not needing extra oxygen