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Side Effects of Mavacamten (Camzyos)
Hypertrophic Cardiomyopathy (HCM) | Last Active: 53 minutes ago | Replies (62)Comment receiving replies
I had HOCM and was treated at Mayo in Rochester, MN. My aorta, ventricle, and septum were thick. They surgeons entered through an artery in my groin and did an alcohol septal ablation to thin down my heart. They did not "crack" my chest. I was in ICU for a few days.
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Replies to "I had HOCM and was treated at Mayo in Rochester, MN. My aorta, ventricle, and septum..."
Thank you for this information. I asked my cardiologist and she said alcohol septal ablation would not be the preferred path for me if the Camzyos doesn't work, and that crack-chest-shave-heart surgery would be better for me. I am treated by a cardiac group that is excellent. Believe me, I'm hoping Camzyos works and that I don't need the open heart surgery.
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jachrist is fortunate that an alcohol septal ablation worked so well for her, I was hoping for the same treatment. This is a very good example of how each of us is different. The doctors at Mayo and my cardiologist at home deemed that treatment inappropriate for me in order to achieve the best results because of the location of the thickness; I had a septal myectomy with excellent results.