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@jmr091805

I started Camzyos today. I am very nervous about both my heart and about the risks and side-effects of Camzyos. I just took the first 5mg dose 2 hours ago and am already feeling light-headed and a bit dizzy. I am in Los Angeles and my cardiologists are at UCLA. They are excellent but my heart is not. Cardiologists have said that if Camzyos doesn't work for me, my only other option is cracking my chest open and having open heart surgery to "shave" down the thickened walls of my heart. My hypertrophic cardiomyopathy has become obstructive. I was diagnosed about 3 years ago and they put me on metoprolol. But about 2 months ago, I started having both-sided chest pressure/ache, shortness of breath, constant fatigue, and I felt my heart "beating out of my chest". Echocardiogram did not show obstruction so they did a special kind of cardiac catheterization where they injected something to speed up my heart and measure pressures and gradients. That showed obstruction even though echocardiogram missed it. I'm 57, male, and am feeling cheated by my poor health. I also have other major health problems. And I live on my own with no one to help me. I'm also afraid of losing my health insurance this year. I was already afraid of it and then the new president came in and seems to be trying to destroy healthcare to pay for tax cuts for the rich. I'm not from LA originally so I don't have friends here and due to my health, I can't work or participate in activities. This feels like the last chapter of my life.

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Replies to "I started Camzyos today. I am very nervous about both my heart and about the risks..."

I had HOCM and was treated at Mayo in Rochester, MN. My aorta, ventricle, and septum were thick. They surgeons entered through an artery in my groin and did an alcohol septal ablation to thin down my heart. They did not "crack" my chest. I was in ICU for a few days.
Find out why they want to crack your chest?

Hi jmr. You sound very low and I encourage you to try Camzyos. It has worked wonders for so many of us here. The side effects are hopefully minimal and will pass quickly. I’ve been lucky in having very few side effects but great results. I’m 20 years older than you and I’ve got my life back. Please persevere. Wishing you well,