Natural remedies for MAC

Malambrit, do you still go to Mayo and do you have an assigned doctor there? I think usually after 6 months not converting, the doctors add or change meds. I would suggest contact Mayo through email, if they gave you your medications and ask how to proceed. I don’t know what state you live in so also look around in your state or around. I know it’s frustrating, not easy when you are tired, and wish your day ended at 6pm and you could sleep, if you can.

Hi Barbara, Thank you for the detailed reply. I am not familiar with MAI. I replaced my very old hot water heater. I don't wear a mask but wet down the soil before working in the garden. The 90/10 is I eat clean 90%. I don't eat processed foods except for very clean protein powder, protein bars. I make sourdough bread and it is white flour, I eat a slice most every day and I have a glass of wine most every night. I have a fairly new shower head but need to do better with cleaning / replacing. I have shortened my showers dramatically which pains me, my shower ritual was a great relaxer for me, an escape of sorts. Like you, I don't really have any symptoms, if I hadn't coughed up blood I would likely never been diagnosed. I really thought after a year of meds, I would have cleared. Thank you again, I pray for your continued strength.

I think what malambrit means by 90/10 is that she eats clean and healthy 90% of the time which is remarkable feat. I wish I could say the same about myself.
When I was first diagnosed, my pulmonologist insisted on airway clearance and she sent me to an ID doctor. Both were not specialists in MAC and both wanted me to start antibiotics right away even though I was not symptomatic. The pulmonologist did not do a good job of explaining why I needed to do airway clearance as I was not bringing up anything and I did not feel I had anything to bring up. I complained about having to do the AC to the ID doctor who then said he didn’t think it did anything anyway and as far as he was concerned I didn’t need to do it. Thankfully I didn’t fully abandon airway clearance and stopped going to that ID doctor and made an appointment at NJH. People on this forum helped me realize how important nebulizing 7% saline and airway clearance is to do every day.

Hi, new to this group but was diagnosed a year and 2 months ago with Bronchiectasis and MAC. March will be 1 full year on the 3 antibiotic cocktail and I received my most resent result with MAC positive this morning. I am so discouraged. I haven't had any "bad" side effects from the drugs. It was about 9 months in before I found out about airway clearance. I did go to The Mayo for testing in December but my local Pulmonologist has left the hospital and there isn't a local replacement and I haven't been referred to a near by Dr. at this point. I do have a local IDD. It has been a frustrating journey. Until the Mayo, when I went to appts, no one listened to my lungs, did pulmonary function test... I am 59, work out regular but this has been more challenging, mostly due to being tired and if I'm honest, a lack of motivation. I eat very clean 90/10, I do enjoy wine and buy European wine to avoid added toxins. I bought a life straw water filter, change out tooth brush regular.... I live on 10 acres, have animals, garden.
I take supplements and provided list with all drs I have seen. I have started taking Oregano oil as well. Has anyone in this group been on the Big 3 for a year and still not cleared the infection? I am considering stopping the treatment for fear of what else is happening to my organs. I really want to live a long, productive life and I am scared and feel like I am on an island by myself.. Sorry for the rambling- My anxiety is over the top today!