Probiotics for SIBO?

Have you been evaluated for mast cell activation? My daughter suffered from SIBO, but the root cause was mast cell.

I was prescribed rifaximin for my heartburn and digestive issues. Problem was when I got off it, the symptoms returned. After 3 endoscopies, and also put on a Proton Pump Inhibitor each time, the GI doctor told me to never take a Proton Pump Inhibitor again - it was the same issue, once off of it, the symptoms returned.
That's when I changed course and sought out a functional medicine doctor who tested me for multiple causes for my SIBO as well as running other tests. The difference with a functional medicine doctor is that they look for the causes of your symptoms - looking for the cause and treating it also treats the symptoms. Same with osteopaths or naturopaths. They look at things differently than traditional medical doctors.
Here's the website to find one a functional medicine doctor in your city and state: ifm.org. You can see what their specialties are. It is well worth the cost of having a doctor who looks for the CAUSES.

I was prescribed rifaximin for my heartburn and digestive issues. Problem was when I got off it, the symptoms returned. After 3 endoscopies, and also put on a Proton Pump Inhibitor each time, the GI doctor told me to never take a Proton Pump Inhibitor again - it was the same issue, once off of it, the symptoms returned.
That's when I changed course and sought out a functional medicine doctor who tested me for multiple causes for my SIBO as well as running other tests. The difference with a functional medicine doctor is that they look for the causes of your symptoms - looking for the cause and treating it also treats the symptoms. Same with osteopaths or naturopaths. They look at things differently than traditional medical doctors.
Here's the website to find one a functional medicine doctor in your city and state: ifm.org. You can see what their specialties are. It is well worth the cost of having a doctor who looks for the CAUSES.

Trio-smart test. It's like$300 but my insurance paid for it. It's important
to know if you have hydrogen or methane and this tests for both. It's an at
home test. I scored 77 for methane. Your score should be less than 5.
I've read that experts believe up to 80% of people diagnosed with IBS
really have SIBO. And it can come back because after many years they
develop biofilms. I'm taking anti biofilm every day. I started with
various supplements and was able to knock it down 20 points. Now I'm on
xifaxin, 2nd dose with anti biofilm, atrantil, megaspores, and fodzyme.
I'll stay on these maybe forever. Not sure till I have my 3rd test.

I'm curious what protocol they implemented for you. I did the Rifaximin as well with my SIBO specialist, but also am on Neem 2 tables of 500 mg 3 times a day. He said that if that does not work, as SIBO is extremely difficult to treat, we will move on to another protocol. He has several he uses. I am also taking a probiotic now that I am off the rifaximin but I will say the symptoms have returned, although not as bad as they were. It's clearly not completely fixed. Neem is supposed to help heal the gut lining.

My doctor ran tests, aside from bacteria, to see if I was gluten intolerant, have parasites, a fungal infection, a yeast infection - some of which also disrupts and thins the gut lining. Dietary changes were also made based on results and her nutritionist helped me with foods to incorporate and foods to omit, especially sugars as bacteria feed on it. Prebiotics and probiotics were also prescribed. And other nutrients, vitamins and minerals, I was tested for, where I was too low. Additionally, my doctor emphasized how stress disrupts the gut. There's a strong connection between the brain and gut (google it to learn about it) and stressors are huge in impacting our gut. My doctor also has on staff an educator to talk about the brain and gut connection and how to go about minimizing our stress with meditation and breath work on a daily basis. All of this is a process that needs to slowly be incorporated and be consistent with to achieve healing and building the gut lining back to health. Hope this helps! Best to you!

I know all about the stress and gut brain connection. Unfortunately, without disowning my children and quitting my job, some stress can't be alleviated. I'm trying so hard! I also have malabsorption so all my vitamins and minerals are low despite supplements. Having MTHFR doesn't help the situation, as well as Ehler's Danlos. I even have to do iron infusions every 6 months or so. I'm trying some calming stuff and meditations as well as the neem and lots of supplements, and a supplemental Fairlife protein shake a day. I've also cut out almost all lactose. It sounds like you have an amazing doctor. It's shameful functional docs aren't covered by insurance and supplements aren't covered either, when that is so much better for us than pharmaceuticals.