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Alternative Treatments for MAC: immunotherapy, etc.
I was diagnosed with MAC a little over 2 years ago. Have not yet starting taking antibodies. Although I suspect this will happen in the very near future. Has anyone explored alternative treatment, i.e. immune therapy?
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@gigiv this is the first I am learning of red light therapy and lung health. I know many use for chronic pain and I have been curious about it in this regard but the science of it, and all the marketing around it, have put me off just in terms of working through it and understanding what I need and buying the right equipment. I am curious in others experience with red light therapy, for any use really, but particularly as regards their lung function. Any recommendations on red lights themselves would also be very helpful. Thanks.
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1 Reaction@bayarea58 Using light therapy for the lungs is NOT new. In Europe, people with tuberculosis at the beginning of the 20th century were sent to sanatorium, where besides good nutrition, rest and respiratory therapy, they were purposely exposed every day a limited amount of time to full spectrum sun rays. Dr. Anderson explains clearly the science behind the red and infrared light therapy. He seems to recommend the pads you can wrap around the chest. I have not found one yet, don't have much time to look for it (I still work full time), but it's on my mind a LOT. There are some advertisements/illustrations that pop up during his talks, where you see pads, panels, lamps, etc. One woman in this group said she was using a Platinum panel with success. Another one has a Hooga Panel and she seemed happy with the results too. PLatinum seems to be high quality but very expensive. No data on Hooga.
I got a Platinum biomax 600 panel in the fall. I started using it around Thanksgiving. I do believe it has been helping me. I started using it every three days for 3 minutes front, 3 minutes back. I have been increasing very slowly. Now I do 3 minutes front and 4 minutes back plus 2 minutes on my right side. My goal is to never go above 12 minutes total. I am still on the every three days schedule and do not intend to change that. Red light therapy raises atp and raising atp is great until a certain level, then it becomes problematic. (too much of a good thing...). So I believe I am in the safe zone and intend to stay in that zone. Maybe I would get faster results if I were to increase more, but slow progress works for me at this point.
My lung doctor had given me the ok to get a panel back in the fall, but did not give me any directions at all. I have a follow-up appointment in the spring with him, we'll see if the CT shows progress then.
Best wishes of great health to all of us!
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2 ReactionsYou may have already found the MD Anderson report. It, as well as other info on the internet, does mention the possibility of helping with inflammation. https://www.mdanderson.org/cancerwise/what-is-red-light-therapy.h00-159701490.html
Barbara
Sent this originally to @gigiv however I thought my reply was going to you. Good information for all of us. Red Light Therapy from MD Anderson in Houston.
You may have already found the MD Anderson report. It, as well as other info on the internet, does mention the possibility of helping with inflammation. https://www.mdanderson.org/cancerwise/what-is-red-light-therapy.h00-159701490.html
Barbara
Core Power is very high in protein;
Harry