1. < Autoimmune Diseases

What do you take for Cholesterol Control? (NAFLD)

Posted by gema98 @gema98, Feb 3, 2022

I’m curious anyone with NAFLD and now cirrhosis what kind of cholesterol prescription you are on. I’m not feeling comfortable with what my primary Dr has ordered.

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gema98 | @gema98 | 20 hours ago
In reply to @rashida "@gema98 I have had fatty liver disease for about twenty (or more) years. When I was..." + (show)
@rashida

@gema98 I have had fatty liver disease for about twenty (or more) years. When I was first diagnosed I was prescribed a statin but a few years later I stopped taking it because I had read it leads to other problems. Decided I could live with the disease without the side effects caused by the statin.

Recently I had an abdominal ultrasound which indicated scarring of the liver has started. I have been referred for a liver biopsy which I will have next week. Will see what the results of that are going to be.

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In 2018 a GI mentioned fatty liver to me but then I had a biopsy and was told PBC/cirrhosis. Ursodiol brought down my enzyme levels, but my ALP never did get into the good range. I have a new hepatologist now so I’m anxious to see what she says when I see her in April.

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jabrown0407 | @jabrown0407 | 10 hours ago
In reply to @grannyzoo "I take NO sugar and NO Gluten and watched my numbers take a nose dive." + (show)
@grannyzoo

I take NO sugar and NO Gluten and watched my numbers take a nose dive.

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I have Polymyalgia Rheumatica (PMR), an autoimmune disease that thrives on causing inflammation. I gave up sugar almost three years ago as a portion of an anti-inflammatory diet. I had given up white flour several years earlier as a portion of my overall organic goals to reduce processed foods, and white flour is processed. With each item I watched my Lipid Panel reward me. I don't need a statin, my cholesterol is better than it has been in 25 years.

Giving flour up also reduced my sugar intake, so once I decided to eliminate sugar it was not too hard, but I will admit the first two weeks were a struggle as my body was not happy. Within a month it was easy to resist, within three months I no longer even wanted sugary treats.

The rewards of eating well are often fewer Big Pharma drugs. I never need to worry about Type 2 diabetes also.

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1 reply
tuckerp | @tuckerp | 10 hours ago
In reply to @norfolkgrower "I tried different statins for 20 yrs - always had to get off due to overwhelming..." + (show)
@norfolkgrower

I tried different statins for 20 yrs - always had to get off due to overwhelming muscle and fatigue issues. Just last year sought advice from a lipid specialist who stated my diet and health choices were not the problem and identified a familial/genetic link to my mixed hyperlipidemia, and also advised against statin use for me. I was prescribed Nexlizet - a combo of bempedoic acid and Zetia. Not a statin. Working so well I was able to cut dose from daily to every other day, and there have been none of the problems I experienced with statins.

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I too have issues with statins. I also have FH. I tried Zetia. It works better than statins but I started noticing extreme fatigue. I had just stopped prednisone so I thought this was the problem. I had my testosterone checked . Turns out it was the zetia. Once i stopped I went back to normal. I have not tried the nexlizet. Taking Repatha.

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tuckerp | @tuckerp | 9 hours ago
In reply to @jabrown0407 "I have Polymyalgia Rheumatica (PMR), an autoimmune disease that thrives on causing inflammation. I gave up..." + (show)
@jabrown0407

I have Polymyalgia Rheumatica (PMR), an autoimmune disease that thrives on causing inflammation. I gave up sugar almost three years ago as a portion of an anti-inflammatory diet. I had given up white flour several years earlier as a portion of my overall organic goals to reduce processed foods, and white flour is processed. With each item I watched my Lipid Panel reward me. I don't need a statin, my cholesterol is better than it has been in 25 years.

Giving flour up also reduced my sugar intake, so once I decided to eliminate sugar it was not too hard, but I will admit the first two weeks were a struggle as my body was not happy. Within a month it was easy to resist, within three months I no longer even wanted sugary treats.

The rewards of eating well are often fewer Big Pharma drugs. I never need to worry about Type 2 diabetes also.

Jump to this post

I have always had higher than normal Cholesterol. When I was being diagnosed for PMR at Mayo they found I had blockage in the carotid. They did the testing for FH. The Mayo Dr. told me you cant fix FH with diet. That said I do believe the saying you are what you eat. I had tried to keep numbers down with a keto style diet that worked somewhat but to much fat for me. I was just doing my best with no sugars and breads. Could I have done better. Sure.. Maybe all plant diet. Obviously what I was doing was not working. 100% blocked in the right and 70% in the left. I have told my kids to get tested for FH. but its not a run of the mill test apparently. Unfortunately what we eat and our genetics are 2 tough things to get past.

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