Connect
← Return to Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Discussion
Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (346)Comment receiving replies
Hi Mrgreentea,
It’s good to hear that you’re doing well on Brukinsa. May I ask what your dosage is? My first oncologist had me on 4 pills a day. That was too much for me. I switched oncologists and now I’m on one a day. We’ll reevaluate in a couple months to see if it’s working, or if we need to increase the dosage. I’ve been getting subcutaneous immunoglobulins for over a year. It’s done at a hospital, by wonderful nurses, every four weeks.
I wish you all luck on your health journey.
Replies to "Hi Mrgreentea, It’s good to hear that you’re doing well on Brukinsa. May I ask what..."
Connect
@andilynn I take 2 pills 2x/day w/water. I also drink about 64oz during the day, which can help reduce stress on the kidneys. No reactions. I am curious if your docs have offered any reasons for your response to it. I know other folks have reacted to Z...you might seek them out & see if they have found any solutions (maybe, even as simple as taking it with food). I am also on the CLL community at healthunlocked.com - that would be another place to ask. If Z doesn't work out you can always ask your doc about one of the newer treatment options... Take Care.