1. < Infectious Diseases

actinomycosis

Posted by kat1890 @kat1890, Jul 26, 2011

Does anyone know anything about this? Also, is there a doctor at Mayo-Jacksonville FL who can treat it? Daughter has been sick for 2 years and doctor after doctor has not been able to tell her what is wrong. One of the doctors in Atlanta mentioned this but did not say that this is what she is suffering from.

Interested in more discussions like this? Go to the Infectious Diseases Support Group.

baranups401 | @baranups401 | Apr 30, 2022

I do have this and am struggling with it again. I had a PICC line in to treat it with 24/7 antibiotics and once the 8 weeks was up, they removed the line. I got it again in the same wound and am just defeated.

REPLY
awesomeone777 | @awesomeone777 | 4 days ago
In reply to @uvea10 "Wow! I'm shocked to hear that the docs are dismissing her symptoms especially if she is..." + (show)
@uvea10

Wow! I'm shocked to hear that the docs are dismissing her symptoms especially if she is experiencing drainage. Since you mentioned facial bone decay it sounds more like Cervicofacial actionomycosis. Does she have any infected teeth? What did her X-rays reveal? I guess I'm just shocked that you have not received better treatment for your daughter since actinomycosis can spread to any part of the body. Please ask to see all lab reports on your daughter to make sure cultures were performed. Although actionomycosi may be confused with bacterial infections the microbiologist shouldl know to look for the characteristic granules that can be seen in the pus or exudate from lesions which can help distinguish Actionomycces israelii along with the morphology of the colonies. Sorry to keep asking questions, I'm just very confused by the lack of concern you are receiving.

Jump to this post

You seem to know more about Actinomyces. My blood cultures are not being g held for labs long enough but 1st one was held for 2 to 4 weeks. Each one thereafter to see if it's still there has been 5 days. The sores have now developed Staph and am took off 500 mg pn. And now on Moxycycline. I'm very disturbed by the treatment recieved and lack of knowledge but everything I'm readi g says it takes 5 to 20 days to culture. Who is the best MD to see over actinomycosis ?

REPLY
awesomeone777 | @awesomeone777 | 4 days ago

You seem to know more about Actinomyces. My blood cultures are not being held for labs long enough but 1st one was held for 2 to 4 weeks which showed it. Each one thereafter to see if it's still there has been 5 days and not showing. The sores have now developed Staph and am took off 500 mg pn. And now on Moxycycline. I'm very disturbed by the treatment recieved and lack of knowledge but everything I'm readi g says it takes 5 to 20 days to culture. Who is the best MD to see over actinomycosis ?

REPLY
1 reply
Mentor
Sue, Volunteer Mentor | @sueinmn | 3 days ago
In reply to @awesomeone777 "You seem to know more about Actinomyces. My blood cultures are not being held for labs..." + (show)
@awesomeone777

You seem to know more about Actinomyces. My blood cultures are not being held for labs long enough but 1st one was held for 2 to 4 weeks which showed it. Each one thereafter to see if it's still there has been 5 days and not showing. The sores have now developed Staph and am took off 500 mg pn. And now on Moxycycline. I'm very disturbed by the treatment recieved and lack of knowledge but everything I'm readi g says it takes 5 to 20 days to culture. Who is the best MD to see over actinomycosis ?

Jump to this post

If you feel you are not getting the right answers for your situation, you could seek out an Infectious Disease doctor. If you are in a large medical practice, there may be one in the system. Otherwise you can ask your primary provider for a referral or google for "Infectious Disease Specialist near [your location]".

REPLY
View MoreView Less
Please sign in or register to post a reply.