1. < Stroke & Cerebrovascular Diseases

Cerebellum Atrophy

Posted by howardjames @howardjames, Jun 5, 2016

My husband has been diagnosed with cerebral atrophy. Is there anyone with similar diagnosis? In January of 1915 he was given 3 to 4 years to live.

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

sherlea2024 | @sherlea2024 | Jul 30, 2024

No I don't know much on it but hoping I can piggy back on your comment to find answers on my question. I guess that's ok huh? Maybe help u too. I'm 60 yrs old. I have a daughter who is in her middle 40s. She had a aneurysm towards the back to side of her head. Dr. Clipped it for the 2nd time which was unexpected. She is surviving today. Here's the strange part. I have a daughter who is almost 32. Several years ago after older child had hers my other daughter had the same thing happen.. same side of head, same position and as well she also is in her recovery and has seizures but not the older of the 2. Only other family member who had a aneurysm in his stomach and survived with no outcome, he passed from breathing issues and old age. He survived. I ' knock on wood' haven't been a aneurysm patient. Should I be concerned for my other child or my grandkids ?

REPLY
sally12345 | @sally12345 | Aug 9, 2024
In reply to @howardjames "I still have not heard from anyone who has a diagnosis of cerebellum atrophy. Does no..." + (show)
@howardjames

I still have not heard from anyone who has a diagnosis of cerebellum atrophy. Does no one have this dianosis? We have been to Mayo Clinic in Rochester, Mn. who gave him 3 to 4 years to live. He does not have Parkinson's disease although his ability to write has become illegible. His speech is becoming harder to understand. We have tried many sites but most are for Parkinson's studies or Alzheimer's. He has neither. His cerebellum is dying. Should we go somewhere else and where?

Jump to this post

Hi, I have a son who has cerebellum atrophy. He is going 33 . He has t h e same . Taking meds for it but really from what I have ga t here's it's a progressive .

REPLY
daniellef2025 | @daniellef2025 | Feb 16 6:20pm

I was recently diagnosed with significant cerebral atrophy which is not related to dementia or Alzheimer’s although I was also diagnosed with mild cognitive impairment. I suffered a very severe TBI in 1997 and a more minor one in 2015 that are thought to be the cause. I’m wondering if anyone can help with what to expect. I’m a mess of emotions and anxiety right now since I have to wait another year to get a timeframe but the symptoms are severe enough to require the neurologist appointment according to my PCP and a personal call from the doctor to give the diagnosis instead of a nurse. Any advice is truly appreciated!!

REPLY
2 replies
gloaming | @gloaming | Feb 17 11:23am
In reply to @daniellef2025 "I was recently diagnosed with significant cerebral atrophy which is not related to dementia or Alzheimer’s..." + (show)
@daniellef2025

I was recently diagnosed with significant cerebral atrophy which is not related to dementia or Alzheimer’s although I was also diagnosed with mild cognitive impairment. I suffered a very severe TBI in 1997 and a more minor one in 2015 that are thought to be the cause. I’m wondering if anyone can help with what to expect. I’m a mess of emotions and anxiety right now since I have to wait another year to get a timeframe but the symptoms are severe enough to require the neurologist appointment according to my PCP and a personal call from the doctor to give the diagnosis instead of a nurse. Any advice is truly appreciated!!

Jump to this post

Sorry for this news, Danielle. I wish I had anything to offer, but it's well outside my knowledge base. About the best you can do is to seek some help verbalizing your concerns with perhaps a social worker, good friend...anyone who will listen and maybe put their brain to work to help you to get on top of this better than you're managing right now. It's hard to be patient when things are going wrong, and when you feel helpless.
If it helps the least little bit, you're syntax and expression style are really great....so despite a slight cognitive impairment, you sound good in my humble judgement. 😀

REPLY
westd | @westd | Feb 22 3:02am
In reply to @daniellef2025 "I was recently diagnosed with significant cerebral atrophy which is not related to dementia or Alzheimer’s..." + (show)
@daniellef2025

I was recently diagnosed with significant cerebral atrophy which is not related to dementia or Alzheimer’s although I was also diagnosed with mild cognitive impairment. I suffered a very severe TBI in 1997 and a more minor one in 2015 that are thought to be the cause. I’m wondering if anyone can help with what to expect. I’m a mess of emotions and anxiety right now since I have to wait another year to get a timeframe but the symptoms are severe enough to require the neurologist appointment according to my PCP and a personal call from the doctor to give the diagnosis instead of a nurse. Any advice is truly appreciated!!

Jump to this post

DBT therapy is an option. Is everything I knew deep done just reinforced & applied to life. Good luck!

REPLY
View MoreView Less
Please sign in or register to post a reply.