Cerebellum Atrophy

No I don't know much on it but hoping I can piggy back on your comment to find answers on my question. I guess that's ok huh? Maybe help u too. I'm 60 yrs old. I have a daughter who is in her middle 40s. She had a aneurysm towards the back to side of her head. Dr. Clipped it for the 2nd time which was unexpected. She is surviving today. Here's the strange part. I have a daughter who is almost 32. Several years ago after older child had hers my other daughter had the same thing happen.. same side of head, same position and as well she also is in her recovery and has seizures but not the older of the 2. Only other family member who had a aneurysm in his stomach and survived with no outcome, he passed from breathing issues and old age. He survived. I ' knock on wood' haven't been a aneurysm patient. Should I be concerned for my other child or my grandkids ?

Hi, I have a son who has cerebellum atrophy. He is going 33 . He has t h e same . Taking meds for it but really from what I have ga t here's it's a progressive .

I was recently diagnosed with significant cerebral atrophy which is not related to dementia or Alzheimer’s although I was also diagnosed with mild cognitive impairment. I suffered a very severe TBI in 1997 and a more minor one in 2015 that are thought to be the cause. I’m wondering if anyone can help with what to expect. I’m a mess of emotions and anxiety right now since I have to wait another year to get a timeframe but the symptoms are severe enough to require the neurologist appointment according to my PCP and a personal call from the doctor to give the diagnosis instead of a nurse. Any advice is truly appreciated!!

Sorry for this news, Danielle. I wish I had anything to offer, but it's well outside my knowledge base. About the best you can do is to seek some help verbalizing your concerns with perhaps a social worker, good friend...anyone who will listen and maybe put their brain to work to help you to get on top of this better than you're managing right now. It's hard to be patient when things are going wrong, and when you feel helpless.
If it helps the least little bit, you're syntax and expression style are really great....so despite a slight cognitive impairment, you sound good in my humble judgement. 😀

DBT therapy is an option. Is everything I knew deep done just reinforced & applied to life. Good luck!

I was diagnoed several years ago. An MRI showed my condition immediately.
I have seen 5 Neurologists over the years, one most rexcently and have been told consistantly, there is nothing that can be done.
I even saw what is called a ''walking Neurolgist". I didn't like her much.
What was helpful was a Neurological PT. She specialized in brain conditions.
Alex

I sent you along email; I guess you didn't receive it.
Any way, I waa diagnoset some 13 years ago. I have seen 5 Neurolgists, one a few months ago, most of them were,unanbleor unwilling to help. one, years ago was kind and patient.
There is such a specialty called a Neurolgical PT; she was most helpful.
By the way, they are doing research on Cerebellum Atrophy in France.

Welcome back to Mayo Clinic Connect, @alexgoldman2.

I’m not sure where the atrophy is yet, we won’t know for certain until January after I have another MRI and compare it. As of right now, a lot of the symptoms are aligning with bvFTD but not the memory loss. That seems to be separate, unless it’s further along than we thought. I was finding some relief with Brahmi and some Perimenopause support herbs but even those aren’t helping much anymore.