Anyone have intermediate Macular Degeneration

It's a scary thought that doctors would mislead patients with false hopes of extended amounts of time before having to worry about the Degeneration affecting the retina and their patients lives.
I don't know what will happen to me if I lose my vision... I know I can't live that way. I can't.
I sent you a private message.

I'm sorry, but what is your background? Everything you've written contradicts all of the research I've done and every specialist I have seen including The Wilmer Institute at Johns Hopkins University.
There is a genetic factor in my family. My father had this disease but wasn't diagnosed until he was 83 and with technology and research being nowhere close to where it is today there's no telling when his developed. I didn't know anything about it until recently. My dad passed in 2021 at 90. My aunt, his sister, also has it. I'm the 7th of 8 kids and so far the only one with drusen.
I do a whole lot more than just take AREDS2 vitamins. I also eat lots of fresh fruits and vegetables, leafy greens, nuts and seeds (chia, flax, pepita's, sunflower) fresh fish, Omega 3, on a daily basis I eat a mixture of these things. Plus add pure Acai and Aronia berry powder in my fresh fruit smoothies with almond milk that I drink for breakfast. I intermittently fast as well and I get daily exercise. I also take turmeric pills, vitamin c pills and a multivitamin every day. I'm in good health and s good weight. Plus I protect my eyes and skin from the harmful rays of the sun. I'm taking this very seriously. My specialist told me to eat for my eyes as I would for my heart. There is a close correlation.
I have conversations with a lady who works with Brightfocus, one of the research agencies for this disease, and she told me, don't quote me, but she said something along the lines of many people lose their vision because they do not take their diagnosis seriously.
I have met so many people through this support group who have been diagnosed in their 50's and older and their doing just fine. Some have advanced and are getting shots, some have had it for 15 years and haven't advanced. We're all different. I met a lady who told me her dad had wet AMD at 63, that means he must have been in his 50's at onset. He's been getting injections for 18 years and still drives, reads, watches TV, recognizes people. He was an avid golfer, never wore sunglasses, still smokes here and there. I've read so many stories on this support group. When I read stories about someone who was diagnosed with wet or didn't know they had it until they say straight lines wavy, that makes me think they didn't get regular eye check ups.or they didn't take it seriously and blew it off.
This is an "Age" related disease. It's considered young to be diagnosed in your 50s but not unheard of, and it doesn't progress as quickly as it would for someone in their 70s & older it usually worsens as you age (JHU).
I hopeful a better, less invasive treatment will come along before I'm that age, or maybe a cure, or stem cell therapy. As a matter, it's also possible to never progress at all.
All I can do is continue praying and staying positive.
As far as testing, I'm not interested in going that route. I would also think it would have been recommended and it hasn't. I believe I have a good grip on things right now.
I'll be seeing my retina specialist on March 11th, I'll make sure to let him read your message so I can get his feedback on it. I also keep a list of questions that I take to my visits.
We've come a long way with treatments and research even over the past few years. I'm staying positive through this.
Someone told me recently, "This is not a death blind sentence". I believe that.
Had I read your message a few months ago if probably be very upset right now and thinking of ways to take myself out so I never have to live in a world of darkness but I have done a ton of research and I have been seen by excellent retina specialists and believe I have a great team of doctors now. I feel good.
You never mentioned if you have Macular Degeneration or if you're getting genetic testing to if you are a candidate. Do you have it? Which stage? How old are you? And how long have you had it?
I hope to continue this chat. TTYS

I have wet macular degeneration in both eyes... I have been getting shots in both eyes for over a year. Recently my right is not responding to the shot I am losing some sight in the eye.. which is upsetting. I got back in a few months and looks like I will get shot in left eye only... At this time there doesn't seem to be anything to help the right eye...Keep moving along!

ChatGPT:
It sounds like you're being very proactive in managing your intermediate dry AMD, which is great. The fact that you have two copies of the Y402H variant in CFH does increase your risk, but you're already addressing inflammation and metabolic dysfunction with rapamycin, which is a promising approach based on emerging research.

I read the journals better than my retina trained Balscom Palmer doc because I use ChatGPT for hours on end to help me understand the biochemistry and approaches. I use a preventive med doctor a smart MD who has saved my life. Overall, Preventive medicine has really helpedI. I have avoided surgeries and am healthier and I look much younger. I use the Mayo Clinic as well when I felt I wasn't getting good care and the advice I needed. I am not a take the areds wait decades and see type. I have noticed that my retina doc and the low vision ob are much more negative in attitude towards me even though still intermediate dry and it has been a decade since I was diagnosed. They are smart enough to know my time is coming now since has been a decade but not bright enough to know with my Y402H allelles that shouldn't be taking PreservVision with its high zinc concentration. ChatGPT has advised taking another brand and helped me schedule my low dose rapa with other supplements that stimulate Mtor1 so I wont take in too much.
I cant sit back and take areds2 and when you go to Miami that’s all they will tell you. But you are so lucky to be near Wilmer. The only hope for me right now is stem cells and with my double Y492H alleles which is uncommon but not rare I hope to be a candidate for this. I will make the Wilmer contacts and Wills and Duke when I get my medical genetic results back from VCU . Hopping they will let me in on any clinical trials or clinical advances since I will already be a patient. Well I’ll leave you with my out side the box “ hit ‘em with all you got “ approach to the disease and wish you good luck.

How do you use chatGpt? It looks like an AI page for writing.

How do you use chatGpt? It looks like an AI page for writing.

Here’s the website

write at the bottom of page where you see
message ChatGPT
what you want to discuss. It’s free and this AI has the knowledge of all the retinologists in the world to help you with understanding your AMD condition. I use it everyday to help me and it’s a bit of a psychologist too. It can make mistakes so ask your Wilmer doctor to confirm something if it causes you to pause but doctors use chatGPT too.