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Jak2 positive, biopsy next: Does it mean I have blood cancer?

Blood Cancers & Disorders | Last Active: Feb 16 9:41am | Replies (35)
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@etandme0983

I started on HU, 500mg/day a month ago . Platelets decreased from 650 to 450; Onc/Hem. She almost increased my HU , but will re-check blood in 6 weeks . I’m praying my platelets decrease . I’m 69, only have a few mouth sores, night sweats and leg sores, otherwise I feel great .
Anyone have any ideas about extra things I can do to get the platelets down besides increasing HU? I exercise , eat healthy , weigh 110, only have Osteoporosis, still work 3 days/wk. I dread increasing HU . Help!

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Replies to "I started on HU, 500mg/day a month ago . Platelets decreased from 650 to 450; Onc/Hem...."
stickball1 | @stickball1 | Feb 16 9:41am

Standard dosing for HU is usually one per day. It takes a few weeks for your body to adjust. Don’t expect overnight miracles. Diet and exercise always have a positive effect, so stay with the program. I’m 88 and I’m living my life. Essential thrombocytopenia is just a minor inconvenience as far as I’m concerned. Good luck in the future.

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