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Urostomy after cystectomy: Extension tube for sleeping?

Posted by donpeg @donpeg, Jan 14, 2025

My husband has a urostomy. He uses a bard foley bag but it is not long enough to turn at night.
What extension tubing could be used to make it longer? Thanks

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katydid77 | @katydid77 | Feb 15, 2025
In reply to @jguggia2 "For my urostomy night bag, I cut me a 1"x3"x35"length of oak molding. Sanded the end..." + (show)
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For my urostomy night bag, I cut me a 1"x3"x35"length of oak molding. Sanded the end that shows from the out side of the bed. I put a large sturdy hook on the end of it and put it between the mattress and box springs and you can adjust it to go closer to towards your urostomy bag. Let it stick out about 2" from the mattress and box springs. by doing this you don't have to lay it in a trash can. I found a nice clear plastic holder at Target in their office supplies area. Since I have a bad hip and need to move it during the night I have reverted to using my Apple watch and set the alarm for 12:30, 2:30 and 4:30 to empty my bag that way I can move around with no restriction. I did make a board for my motor home also. Jackie

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Thanks so much for your information. It’s helpful to learn how other people solve problems.

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donpeg | @donpeg | Feb 21, 2025
In reply to @colleenyoung "@donpeg, good question. I added your post to the Ostomy support group too. I'm also tagging..." + (show)
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@donpeg, good question. I added your post to the Ostomy support group too. I'm also tagging some fellow urostomates like @msrollo1960 @katey122 @gordy6898p @katydid77 @ggarrepy @jmcmurdo to see if they have some tips to help your husband sleep more comfortably.

Donpeg, how long has he had the urostomy?

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October 8 2024. He is an engineer and is trying to design a fix. If the bag fills up and doesn’t drain the seal breaks. Not draining is sometimes caused by the valve. Bd/ Bard should invent a nighttime bag long enough for a patient to sleep comfortably and turn.

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1hillsfr | @1hillsfr | Feb 21, 2025
In reply to @donpeg "October 8 2024. He is an engineer and is trying to design a fix. If the..." + (show)
Profile picture for donpeg @donpeg

October 8 2024. He is an engineer and is trying to design a fix. If the bag fills up and doesn’t drain the seal breaks. Not draining is sometimes caused by the valve. Bd/ Bard should invent a nighttime bag long enough for a patient to sleep comfortably and turn.

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Had same issue.went to hardware store bought connector for joining two pieces of hose and two feet of clear hose.splice the hose to the length I wanted.Now I can use either a long hose a night or short strapping to my leg when I am out and about.I cleaned everything with alcohol prior to using.

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jmcmurdo | @jmcmurdo | Oct 3 6:37pm
In reply to @chucklesg "I use the night bag from Coloplast and it is 4' long not counting the bag...." + (show)
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I use the night bag from Coloplast and it is 4' long not counting the bag. From the looks of it I think it could be easily joined with another 4 feet, but I'd contact Coloplast as their customer service is quite good. The tube itself is 4 feet long, and separate from the bag. You just insert the tube in to the bag, and I've never had an issue with the bag or the tube.

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@chucklesg I also use the Coloplast night bag with the hook that attaches to the bed frame.

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drw5 | @drw5 | Oct 4 6:29am

I use a Convatec jug/bottle and place it in a small plastic bucket. It has a 4' long tube. I've never had a problem.

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