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Controlling Tinnitus: What works for you?

Posted by scottk @scottk, Jul 1, 2019

Hello: Has anyone on this site had any luck with controlling tinnitus? I see certain things advertised but always sceptical. Any thoughts/ideas?

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Curt | @cvzird | Feb 9 5:24pm

My tinnitus started about 10 years ago and hasn't changed since. The SBUT's are especially bothersome. You can read more about these at this link and the referring document is below:
https://pubmed.ncbi.nlm.nih.gov/21970850/
Item 1-1 of 1 (Display the 1 citation in PubMed)

1. Sudden brief unilateral tapering tinnitus: prevalence and properties.
Oron Y, Roth Y, Levine RA.
Otol Neurotol. 2011 Dec;32(9):1409-14. doi: 10.1097/MAO.0b013e3182355626.
PMID: 21970850

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Curt | @cvzird | Feb 9 5:28pm

Just want to add that the SBUT phenomenon is ON TOP of the extremely high constant tinnitus that is in my right ear (recently both) and the main thing I'm doing about it is to learn to live with it.

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bearydude68 | @bearydude68 | Feb 13 11:40pm
In reply to @bobbyboomer "I take 2 in the morning on an empty stomach with a glass of water, and..." + (show)
@bobbyboomer

I take 2 in the morning on an empty stomach with a glass of water, and one sometime later in the day.

I read in a few places (including pubmed) that people have taken 3,000mg a day with no noticeable side effects. I could go more, but I wanted to be conservative.

I've been doing this for a couple of years now, and since I found this thread, I have noticed that most days are just the softest hiss, some days are quiet, and I've had no actual ringing days. But like I said, my tinnitus has always been variable. But before the Taurine, they have never been this quiet.

It worked very gradually for me and the longer I'm on it, the better it is working.

I'm used to ignoring it, so every time I read this thread, I stop to listen. Today the left ear is completely quiet and the right ear has the slightest hiss. I need a quiet room to hear the hiss.

Bob

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hi bob

how is your tinnitus now ?
are you still taking the taurine ?
pls kindly advise tku

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fncz | @fncz | Feb 14 8:26am

I’d love to learn some techniques for my tinnitus. Especially during the day.
There is one good use I have from it.
I’ll use it as a sound for meditation as well as going to sleep. I listen and let myself be ok with it.

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1 reply
sandwalk | @sandwalk | Feb 15 10:55am

My sounds are like birds chirping... that's what I thought it was until I realized it also happened at times when birds weren't around? 😃

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shelley001 | @shelley001 | Feb 15 1:59pm

Did all of you have radiation treatment to your head and neck? I have it in both ears. What I have is high pitched, constant and loud enough to distract from what people are saying to me. I also have what I call "zapping" in the center of both ears. I feels like it pings throughout my head. It does not hurt. It is just worrisome. It will feel like the noise from both ears connect in the center and cause a different noise/sensation than the constant high pitch roaring. I would love any insight to help make any of it less prominent. I had five day a week/2 months of radiation treatment for inoperable stage IV oropharyngeal SCC.

I hate the ringing, but I hate cancer more. I am two years out of treatment and scans still showing NED.

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willows | @willows | Feb 15 2:23pm

I use hearing aids in both ears and through Bluetooth I can connect to my phone where I have stored nature sounds. It works quite well for me and it’s portable. As long as I have my phone I can tune in to my saved recording.

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sandwalk | @sandwalk | Feb 15 3:34pm
In reply to @fncz "I’d love to learn some techniques for my tinnitus. Especially during the day. There is one..." + (show)
@fncz

I’d love to learn some techniques for my tinnitus. Especially during the day.
There is one good use I have from it.
I’ll use it as a sound for meditation as well as going to sleep. I listen and let myself be ok with it.

Jump to this post

Excellent!
Mine are birds tweeting 🥰

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1 reply
3lesley | @3lesley | 6 days ago
In reply to @nurseheadakes "Ah...tinnitus What a noisy little buzz that is always pestering us when we least want it..." + (show)
@nurseheadakes

Ah...tinnitus What a noisy little buzz that is always pestering us when we least want it but can't get rid of it. Did you know there are some 50 million plus people with this milady and there is no cure for it? But research is being conducted on it in earnest. https://www.ata.org/news/news There is an actual organization that is exclusively directed towards Tinnitus and all of the information and answers you may have about how you can take care of yourself to minimize the effects of the buzz in your head. https://www.ata.org/understanding-facts Since hearing loss may be a part of the tinnitus or even contributed to the tinnitus, we can't discount learning about this as well. So, surround yourself with information and try to understand what you have and how this all adds up to help you identify what needs to be treated and how you can feel well despite what may not be the best outcome. We can still exist with what we have using tools to help us hear, see, move and exist in our world. We need to discover what those tools are and how they will help us. These organizations and people are there to help us do that. We are here in this place to find what's out there and to bring that here and say, that they have helped me. I have had the buzzing for years because of toxic meds -so it will never go away. I have hearing aids that mask them. I try not to listen to them. I drown them out with background noise, music, TV and other noises so that I don't always know that they are here. If I am busy, I don't know that I am having them. If I talk about them - they become loud. But If I don't talk about them and am busy with activities - they aren't really noisy. Meds I take do influence their effect but I take less of the ones that cause the most side effects. I hydrate myself well so that my body has enough fluids on board. Migraines are also part of my life but I keep my stimuli under control so that my tinnitus are also under control since they seem to work in tandem.
Check out the websites and see what you can find that is applicable to you. Write down those items you have tried and what might work for you. Keep a diary so that you keep track of symptoms - this helps when working with your doctors as it does with my doctors. It provides proof. Eloise

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Dr Djalialian in Irvine Ca has been studying tinnitus for over 20 years. He has started and trained clinicians at neuromed Tinnitus clinic which will give you a free consultation then it gets expensive for the treatment but it is available. I am just sharing because my daughter has cochlear migraines and he seems to be the only doctor we found ( and we live in NYC) who treats and understands this condition which causes permanent hearing loss and chronic tinnitus.
I am trying to spread the word that this condition exists so it will be treated properly by ENTs and neurologists who may need to work together to treat this. I hope this helps. Yes sleep, hydration and diet are very important. Many foods need to be eliminated- caffeine, dairy, nuts, citrus, left overs because they produce something that triggers migraines ,alcohol, yeast in breads, processed foods.
Regards,
Lesley Hirshberg Miller, MD

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nurseheadakes | @nurseheadakes | 6 days ago

Thank you Dr Miller. Nationwide this topic/subject is undergoing a huge research and scientific study to find ways to control it as well as find where and how it works. From treating our vets to those of us who have it from various sources (accidents, hearing loss, ototoxicity, COVID, loud noises and other reasons), many universities, institutes and specialists are going to the route to find and treat this disorder of the brain. Until then, we have various tools to use to manage the tinnitus only. There is NO cure for it yet. I follow the Hearing Health Foundation HHF.org and their ongoing research on tinnitus as well as Fellows/PHDs and Specialists in this particular field with their ideas of how wide the field is when considering tinnitus is only one of the many disorders - symptom of the brain. I have many and must treat them all to maintain the homeostasis of my existence. If you only focus on one, you miss out on taking care of yourself as a whole person. I.E. I have permanent tinnitus from ototoxicity post C-Diff sepsis. I also have vestibular migraines with centralized vertigo and bilateral hearing loss/deaf/hyperacusis from three MVA. I receive BOTOX injections. I live with my disabilities but am working to decrease my inflammatory state right now.

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