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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (844)Comment receiving replies
Hello @joycehocm,
Thank you for sharing that information. How often will you be monitored on this protocol?
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I'm glad to hear you are feeling so good, and surgery and Camzyos are on hold for now!
Replies to "Hello @joycehocm, Thank you for sharing that information. How often will you be monitored on this..."
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Hi and thank you! I have a virtual appointment at Hopkins in 6 months. But, of course, I contact them if anything changes beforehand. The relatively low amount of monitoring is probably because they have so much data on my heart and because my symptoms are only breathlessness and don't interfere with my lifestyle. I have no pain and can "get up a hill" though breathless. So - Hopkins is basically saying carry on - as is - unless and until something changes. I am not sure what the jardiance is doing exactly. I know the verapamil is a calcium channel blocker so it allows more blood to fill in my left ventrical. My EF is normal so I think that more blood in my heart means more blood to my body. My energy is amazingly better! Hope this helps someone and thank you for the tech info.