I was diagnosed with EPI: Need advice on diet, other management

Posted by pennie225 @pennie225, Sep 5, 2023

After being diagnosed with severe EPI I was told to follow a diet that has no meat , no fish , no dairy and nothing fried. Other members in my household eat what they want and mealtimes are depressing.

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When on pert treatment will the fat exzyme poop test numbers stay low or over several months go back up, ex mine started 145 then 3 months later went to 450, then 3 months later 734? Dr says should stay low! On two-three creon 36000 per meal, one creon per snack. Took over a year to stableize.

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Profile picture for dennisvitali @dennisvitali

When on pert treatment will the fat exzyme poop test numbers stay low or over several months go back up, ex mine started 145 then 3 months later went to 450, then 3 months later 734? Dr says should stay low! On two-three creon 36000 per meal, one creon per snack. Took over a year to stableize.

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I’m sorry I cannot respond to you because there is no question? I presume you wish to discuss something but it isn’t very clear!

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Recently diagnosed with EPI…trying to understand my new life of eating, etc.

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Profile picture for mehere7 @mehere7

Recently diagnosed with EPI…trying to understand my new life of eating, etc.

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Hi @mehere7, and welcome to Mayo Clinic Connect! It is great to see you here finding others to share experiences with.

I do not have EPI but do have my own diet to work with. I treat it like an episode of “Chopped”, stock my kitchen with ingredients my body likes. This way, whoever is cooking knows nothing is off limits. I hope this is a bit of inspiration for you: https://www.everydayhealth.com/hs/exocrine-pancreatic-insufficiency-pictures/healthy-meals-to-manage-epi/

What is your biggest obstacle right now?

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Profile picture for Janell, Volunteer Mentor @jlharsh

Hi @mehere7, and welcome to Mayo Clinic Connect! It is great to see you here finding others to share experiences with.

I do not have EPI but do have my own diet to work with. I treat it like an episode of “Chopped”, stock my kitchen with ingredients my body likes. This way, whoever is cooking knows nothing is off limits. I hope this is a bit of inspiration for you: https://www.everydayhealth.com/hs/exocrine-pancreatic-insufficiency-pictures/healthy-meals-to-manage-epi/

What is your biggest obstacle right now?

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Trying not to be so negative about my situation…

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