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@ache6941

Yes! I have HCM and take 100 mg of beta-blockers twice a day. But my doctor says the LVOT thickness is getting bigger, and the blood regurgitation is getting worse. I need surgery or Mavacamten as soon as possible, but neither is available in my country.

I can feel it—my breathing is getting worse, my nights are sleepless, and now I can’t even walk on flat ground. Life is very hard. I have three children, but I struggle to keep going. Every day feels like a fight, and I am getting weaker. Still, I am happy for those who get a second chance to live, even if I may not.

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Replies to "Yes! I have HCM and take 100 mg of beta-blockers twice a day. But my doctor..."

People travel to Mayo from all over the world. Does anyone know how to contact the people who take a referral for surgery - from reviewing a case to financial help - before the concierge service can do their part?