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Side Effects of Mavacamten (Camzyos)

Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 hours ago | Replies (54)
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@karukgirl

Hello @ache6941, and welcome to Mayo Clinic Connect.
I am so glad you found this site, but I am very sad to hear about the inability to get this life-changing drug in Ethiopia.
It must be so frustrating. I can't even imagine.
You bring up a point that I think many people here on Connect may echo...we are so very blessed to live in the USA or Canada, or other places that have access to this medication. We may often fail to remember other people living in other places do no have the same advantages.
Do you have Hypertrophic Cardiomyopathy?

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Replies to "Hello @ache6941, and welcome to Mayo Clinic Connect. I am so glad you found this site,..."
ache6941 | @ache6941 | Feb 10 9:34pm

Yes! I have HCM and take 100 mg of beta-blockers twice a day. But my doctor says the LVOT thickness is getting bigger, and the blood regurgitation is getting worse. I need surgery or Mavacamten as soon as possible, but neither is available in my country.

I can feel it—my breathing is getting worse, my nights are sleepless, and now I can’t even walk on flat ground. Life is very hard. I have three children, but I struggle to keep going. Every day feels like a fight, and I am getting weaker. Still, I am happy for those who get a second chance to live, even if I may not.

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