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Side Effects of Mavacamten (Camzyos)

Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 hours ago | Replies (54)
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@ache6941

I'm truly happy for all HCM patients who have access to Macavene in developed countries—it's a life-changing opportunity. Unfortunately, in Ethiopia and many parts of Africa, this medication is still out of reach. I hope for the day when such advancements become available to all who need them; otherwise, I am sure that one day, we will all meet in paradise. Wishing everyone on this treatment the best!

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Replies to "I'm truly happy for all HCM patients who have access to Macavene in developed countries—it's a..."
Debra, Volunteer Mentor | @karukgirl | Feb 10 2:44pm

Hello @ache6941, and welcome to Mayo Clinic Connect.
I am so glad you found this site, but I am very sad to hear about the inability to get this life-changing drug in Ethiopia.
It must be so frustrating. I can't even imagine.
You bring up a point that I think many people here on Connect may echo...we are so very blessed to live in the USA or Canada, or other places that have access to this medication. We may often fail to remember other people living in other places do no have the same advantages.
Do you have Hypertrophic Cardiomyopathy?

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