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This program helping me recover
I found this website and the program surely seems to be helping me. I have been following the advice on this page for about 3 weeks now.
Dr. Barbara Johnson Reversing Long Covid -- do a google search with those terms since I can't add a web address.
Of course I still have symptoms but I am much improved over what I was in June. I still have brain fog, tremors in head and upper body, headaches at times, heat bothers me, stomach pain if I eat a lot at one time especially after 4pm. I still can't do my morning walk more than about 3-4 minutes without my heart rate going up to 135 from about 65 resting rate.
In June I couldn't be on my feet more than about 30 minutes in the house and needed to lay down for an hour or two because I was totally exhausted and weak. I am now able to be on my feet around the house or shopping --(moving slowly though) for about 3 hours before I become weak and need to lay down.
The only really frustrating symptom is the weakness that comes on when I try to walk any distance. I'm still not able to do it when back in the spring I was walking about 45-60 min a day. However I found that exercise laying down or sitting is tolerable within limits -- such as a recumbent bike, chair exercises, etc.
Hope this helps someone.
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I highly recommend Dr. Boon Lim, a world class cardiologist in London. He has a lot of videos on youtube dealing with long covid treatments. One of his primary focuses is the auto immune system which he believes is at the heart of the long covid epidemic. This malfunction is referred to as Dysautonomia.
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3 ReactionsThese tolks may be able to help with some of your symptoms.
https://medhelpclinics.com/service/long-covid-clinic
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2 ReactionsHas Dr. Lim helped you?
What are the hurdles you need to pass to get into the Mayo Long Covid Treatment plan? I have severe insomnia due to body tremors at point of falling asleep. I’m just starting down doctoring steps. Only thing that helps me get 4 hours sleep in Ambien. Thanks.
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1 ReactionJust have a conversation with them and they will send you the sign-up form. Call Mayo and ask for the Long Covid Program. The woman I talked to was very helpful and kind.
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4 ReactionsHi @jeffrey57. Mayo does have wonderful helpful staff that may be helped further by your healthcare system direct referral to them. Sometimes know how daunting it is not feeling well and trying to fullfill their needs so this way they have direct contact access to your medical records and your physicians to hopefully get the quickest/appropriate level of care🤞🌈
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4 ReactionsThank you! Very helpful, will look her up
This thread has been going for awhile. It seems to me that the various therapies are really not that helpful. It gives us the illusion that we are at least doing something to get well.
Has anyone really recovered, or are you just resigned to your new normal? Or perhaps just over time your body has healed on some symptoms?
I speak as one who has suffered for three years while going to a long Covid clinic and all sorts of other doctors and therapists. I’ve tried just about everything with no significant improvement. Each new thing I try gives me hope, and then let’s me down.
I operate at maybe 20% of my old normal. It sucks and I am so sick of it.
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4 ReactionsI read the article. With the brain fog it is hard to understand. What were the 3 most helpful things for you and what mg dose? Thank you so much! Really need help
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1 Reaction@dloos thanks for your input which is helpful. I’m two years in, currently a patient at NWMH LC clinic, SRAL for cognitive rehab, etc. and very little if any improvement. I think FOMO drives my efforts to do or try the next “cure”… and now that LC “treatment” is becoming big business, there’s a profit motive at work. However, reliable research is still new and results haven’r yet translated to effective treatments as far as I can tell. Here’s hoping for better news … soon!
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