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DiscussionLiving with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: 2 days ago | Replies (556)Comment receiving replies
Replies to "Hello @janetgeller9 I also welcome you to the PD support group on Mayo Connect. A Parkinson's..."
Hello Teresa, the most difficult adjustment is the loss. Everyday, I feel I’m losing more of him. This was a smart, vital, Type A guy who has become withdrawn and socially isolated. He goes to PT 2X a week, takes his meds and eats well. I think he may have had Parkinson’s for awhile that has gone undiagnosed because he has had/has trouble walking, looses balance, has falling issues, can’t open a jar that I can open,etc. I lost my big strong guy. More upsetting to me is his cognitive changes, poor judgement, non-verbal. I feel very alone. Friends, family don’t live near us anymore. It’s just he and I-no kids. And now it’s not even him. I could go on forever, perhaps. I need community and connection that is absent right now. Also, based on his poor judgement, practically every day he creates some problem that shocks me and then I have to fix it. That partially answers your question but there’s so much more.