← Return to Living with Parkinson's Disease - Meet others & come say hi

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@hopeful33250

Hello @janetgeller9

I also welcome you to the PD support group on Mayo Connect. A Parkinson's diagnosis is hard to accept. This is true for the patient as well as the caregiver. I see you are looking for a support group or a Zoom group.

Here is a link from the National Parkinson's Foundation with information about support in your area, https://www.parkinson.org/resources-support. Just click on "In Your Area" and you can find groups nearby.

On Connect, we have a Caregivers Support Group which might be helpful to you. Here is a link to those discussions, https://connect.mayoclinic.org/group/caregivers/

What is the most difficult adjustment for you right now?

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Replies to "Hello @janetgeller9 I also welcome you to the PD support group on Mayo Connect. A Parkinson's..."

Hello Teresa, the most difficult adjustment is the loss. Everyday, I feel I’m losing more of him. This was a smart, vital, Type A guy who has become withdrawn and socially isolated. He goes to PT 2X a week, takes his meds and eats well. I think he may have had Parkinson’s for awhile that has gone undiagnosed because he has had/has trouble walking, looses balance, has falling issues, can’t open a jar that I can open,etc. I lost my big strong guy. More upsetting to me is his cognitive changes, poor judgement, non-verbal. I feel very alone. Friends, family don’t live near us anymore. It’s just he and I-no kids. And now it’s not even him. I could go on forever, perhaps. I need community and connection that is absent right now. Also, based on his poor judgement, practically every day he creates some problem that shocks me and then I have to fix it. That partially answers your question but there’s so much more.