Female 31, constant PVCs. What can I personally do to help myself?

Posted by missdee1993 @missdee1993, Feb 6 1:13pm

The doctors in my country generally aren’t very explorative. They just want you to take a beta blocker and move on, no desire to help find a cause for PVCs that have bothered me greatly for 4 years. I’ve had a bad week of them, due to see a cardiologist soon. In the meantime, I need some advice on how I can help myself. I took magnesium glycinate and somehow, the PVCs got worse. I’ve improved my eating habits to prevent bloating or IBS. I take electrolytes. But for some reason these things have not helped me this week. I generally don’t have any other symptoms, besides discomfort and irritation. Sometimes a mild chest pain. In any case, this stuff is scary.

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How were you diagnosed? How many are you having.
Because they are essentially harmless, unless you have a large number, an ablation is generally the best way to “ cure” them
Drs. will not typically do this unless they are very high.
I had two areas ablated as I was having so many, over a million in a month.
Mine were literally one out of 3 beats being a PVC.

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A sympathetic electrophysiologist will agree to ablate you if you are otherwise healthy, are young enough to withstand the procedure, and if you are highly symptomatic. Apart from the risk of cardiomyopathy, and the quality of life degradation, the patient has to find the side-effects so intrusive that they begin to suffer emotionally and so do their relationships. Anxiety rises, and it can result in a downward spiral to genuine ill health due to loss of/poor sleep, organ dysfunction, and so on:
https://pmc.ncbi.nlm.nih.gov/articles/PMC6020182/

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@missdee1993
Been plaque with PVCs for decades. I had ablation done on RV and fixed it. PVCs started up again about 2 years ago from the LV. EP advised would try medication first. I was already on Entresto and Carvedilol per my HF doctor.

I was put on a mediation that you take 3 times a day. It is specifically to help reduce PVCs and PACs. It is not toxic like amaridome (spell) so you have to take it every 8 hours as leaves body quite quickly. It worked. May PVCs drastically reduced along with no tachycardia.

You mentioned in your country, so I assume you are not in U.S. I would have suggested second opinion in U.S. at a major medical facility like; Mayo, Cleveland Clinic, John Hopkins, etc.

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I definitely don’t have access to those facilities, I’m very far away from the US (Africa).

What medication do you take, if I may ask?

For me, my PvCs have suddenly gotten worse. Previously I was guaranteed some hours of relief in the day. But this entire week they have been constant, every 3 or 4 beats. I haven’t slept more than an hour or two each night of this week. Which is why I’ve had to schedule an appointment with my cardiologist.

I’ll see how that goes.

Thank you for your reply 🫂

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@gloaming

A sympathetic electrophysiologist will agree to ablate you if you are otherwise healthy, are young enough to withstand the procedure, and if you are highly symptomatic. Apart from the risk of cardiomyopathy, and the quality of life degradation, the patient has to find the side-effects so intrusive that they begin to suffer emotionally and so do their relationships. Anxiety rises, and it can result in a downward spiral to genuine ill health due to loss of/poor sleep, organ dysfunction, and so on:
https://pmc.ncbi.nlm.nih.gov/articles/PMC6020182/

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I was hoping to never get to the stage where I need an ablation.

We will see

I’ve had the worst week yet, non stop PVCs all day, all night. Barely holding it together if I’m honest.

Seeing a cardiologist tomorrow

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@tallej01

How were you diagnosed? How many are you having.
Because they are essentially harmless, unless you have a large number, an ablation is generally the best way to “ cure” them
Drs. will not typically do this unless they are very high.
I had two areas ablated as I was having so many, over a million in a month.
Mine were literally one out of 3 beats being a PVC.

Jump to this post

Mine feel that bad right now, they’ve felt like that all week. I suppose I have to go on a holter for a week or more to confirm the high burden. But I already know, I feel every one of them.

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My PVC's kicked back up again to the tune of about 10-12 per minute. I tried three things at once and they have essentially stopped or at least backed off where I do not have the anxiety anymore that my heart is just going to stop. I started adding electrolytes to my water twice a day (while avoiding all carbonated beverages and sugary beverages), I started taking Magnesium Glycinate, and I started exercising 40-50 minutes a day with heart rate between 120 and 135 at peak (I am 63 y.o. male) We shall see how long this lasts!

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I posted this on another thread, but I take l-theanine (NOT threanine) which is an amino acid supplement and it lessens my PACs and PVCs. It’s available plain, or part of “anti-anxiety” supplement combinations. I take plain 100 mg capsules 2-3 times daily. I don’t experience any side effects.

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@missdee1993

Mine feel that bad right now, they’ve felt like that all week. I suppose I have to go on a holter for a week or more to confirm the high burden. But I already know, I feel every one of them.

Jump to this post

My Dr. Caught mine at a regular checkup.
My pulse was reading really low, maybe high 30s or low 40s.
They did a quick EKG and he immediately could see one out of every three beats was a PVC.
The third beat comes on the heels of the previous beat so the EKG does not catch it.
The beats were there just “ hidden”

I never felt a thing, just extreme weariness that I thought was in my head.
Because they were so consistent, it felt normal.
I would never have known they were there.
He arranged an appt with a heart physician who in turn sent me to an electrical specialist.

Most people do not have an alarming number but if they constantly Moniter themselves with an Apple Watch and see any kind of number that is a bit “ off” they panic.

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@dnaf61

My PVC's kicked back up again to the tune of about 10-12 per minute. I tried three things at once and they have essentially stopped or at least backed off where I do not have the anxiety anymore that my heart is just going to stop. I started adding electrolytes to my water twice a day (while avoiding all carbonated beverages and sugary beverages), I started taking Magnesium Glycinate, and I started exercising 40-50 minutes a day with heart rate between 120 and 135 at peak (I am 63 y.o. male) We shall see how long this lasts!

Jump to this post

@dnaf61
After discussing with my EP I do almost exactly what you are doing.

I was put on a medication that starts with a M and you take every 8 hours. Really reduced PVCs and stopped all tachycardia.

I recently had an episode with my ICD/Pacemaker and EP things electrolytes got off. I started drinking no sugar gatorade but notice it has sucrolose. I found an electrolyte packet on Amazon and will start using that in my water.

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