Protocol after Tymlos
I am supposed to start Tymlos in June. I know that after the two years I will need to take something like Fosamax to lock in the gains. How long do people stay on the second medication? Is this a lifetime thing?
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I recently ended two years of Temlos and have th e results of the DEX scan, all done on the same machine.
Comparison between 2019 and 2022
My Tscore of the spine was-3.3 and a Z score of-1.1( representing a 7.7% decrease in bone density.) before I began Temlos.
Scan I just had done.. L1-L4; T score—
-1.9(+21.4% in bone density)
Left hip T score-1.4( +8.7%)
Right hip T score-1.4( up 7.8%))
I’m really in a dilemma about where to go from here. Any other feedback on Reclast? Like a previous contributor, I’m concerned if I have side effects and you only do the infusion once a year, what are the alternatives? If I need dental work done, is that a problem? I currently am under the care of a new primary care doc who has never had a patient treated with these osteoporosis drugs.. what docs are experts on osteoporosis?
I’m grateful for any feedback..
Many people see an endocrinologist to treat osteoporosis. I live near NYC, and I was able to find a few major medical centers that had departments dedicated to bone disease. Sometimes it can be hard to just pick out an individual doctor who is knowledgeable about it..
Thank you so much for this information.
@mautaylor
Those are fantastic results! Most here do seem to seek out endocrinologists for osteoporosis. I would agree. Presently being treated by a rheumatologist and I fear he doesn’t understand the nuanced medical approach. Good luck with your next steps!
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1 Reactionhas anyone had evenity after two years on tymlos. My spine and left hip are in osteopenia but my right hip is still a bit under the 2-5 mark. My doctor is very aggressive and wants me on evenity for a year.
I'm wondering....when I finish my two years of Tymlos, I'm planning to have surgery to straighten my back. Do I go from Tymlos on Monday to Reclast on Tuesday? No break at all?
do I stop any treatment before surgery? I haven't even begun to research life after Tymlos yet, but making a list of questions to ask several surgeons. I plan to get several opinions from surgeons...and probably several different ideas of how to proceed going forward.
Has anyone else done this?
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2 ReactionsI would suggest an endocrinologist or rheumatologist and before I confirmed the appointment, I would ask if he/she specializes in bone health/osteoporosis. Too many times, I have wasted time and money on a doctor who had no clue. Believe it or not, my cardiologist won't prescribe my blood pressure medicine. He says I have to go to my GP for that. Six months later, I saw a different cardiologist in the same practice....he prescribed my blood pressure meds.....go figure.
This is an issue that puzzles me. When so many people suffer from osteoporosis, you would think more doctors would specialize in it. I will finish Tymlos in March and my New Years Resolution is to do a lot of research and find a doctor for life after Tymlos. I am fortunate to live between two major cities and several major hospitals. Im hoping I can find someone who can help me, will listen to my needs and show some compassion for my concerns and questions. The best doctor is out there somewhere. I actually get more information from this forum than anywhere!!