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Protocol after Tymlos

Posted by jasperina @jasperina, May 7 12:23am

I am supposed to start Tymlos in June. I know that after the two years I will need to take something like Fosamax to lock in the gains. How long do people stay on the second medication? Is this a lifetime thing?

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windyshores | @windyshores | May 7 6:28am

Bisphosphonates stay in the system so we may be able to take drug holidays, with monitoring. I was told they "coat the bones" and that is how they lock in gains. Ask your doctor what the long term plan is. I have also been told we can repeat other meds if needed.

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hardingv | @hardingv | May 7 9:14pm

I just finished 2 years of Tymlos. Earlier my endo said he was considering Reclast (annual infusion of strong biphosphenate) or possibly Prolia. Given good results, We went with Reclast, tentatively 2 years. But it all depends on your own condition (for example Evenity is not an option for me) and experience with
Tymlos (I got to osteopenia by the end of Tymlos).

I would ask what options your dr thinks would be possible follow on, while recognizing there is no way to know right now what would be best when the time comes.

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